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sandra

Pet Peeves, Whats Yours?

26 posts in this topic

Hi everyone,

 

My pet peeve is getting a sore neck keeping my head so high, in order to see the computer with "Progressive Eye Glasses" I had 2 neck surgeries they had to go through the front moving my vocals and all, they put in a Bovine Bone and 6 months later could not pick my head up off my chest! My body Absorbed the Bovine Bone! Then they re-did the surgery and used my own Hip Bone- One month after the Bovine episode Drug administration ordered Doctors not to use them any longer! Hey I guess that's 2 peeves, why not throw in a 3rd- Do we always have to go through dilemmas twice?

 

Sore Neck -Sandra

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Hello Sandra

 

Well it sounds to me as if your body must have been a bit peckish, eating that bovine bone and all. :lol:

 

The thing that aggrivates me the most at present is fit 'n' healty peoples (the peoples! the peoples!) parking in disabled bays. I started a topic about this subject on the UK sub forum and from the replies I can tell I ain't alone in this.

 

Oh yes and the days when my my plastic hands (correctly termed sclerodactyly) decide to drop everything not once, not twice but many times! Some days I could just pitch a fit!. :temper-tantrum:

 

That's it for now but I'm sure if I think long enough....

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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My pet peeves...

 

I travel alot so end up visiting many different "Rest Stops" along the highway, and it never fails that the only stall in use is the handicapped stall... by someone who is not handicapped! I have actually had someone tell me that they prefer them because it is easier for them to 'hover' over the seat! So... not only do they use the only handicapped stall available but they pee all over it! I have actual need of the handicapped stall and have to carry in my own cleaning supplies to sanitize the thing along with paper seat covers because, unlike the hover crowd, I cannot hover!

 

Teenagers that use the motorized carts that stores provide. I have seen teens walk into stores in giggling groups and hop into the carts like they are there for fun then take off in them. There is nothing the stores can do, they cannot prevent anyone that wants to use them from using them.

 

People who push a person in a wheelchair out of their way so that they can reach what they want then and there. You would not believe how many times this has happened to me! I will use my wheelchair in Malls and people will actually push me in my chair to the side if they want to get something. It is not like I am 'parking' someplace blocking access, I am shopping!

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Sandra,

Call you eye doctor today about computer glasses! I mentioned the same problem that you are having to my eye doctor last year (my neck was always sore!) and she wrote a special prescription for what she called computer glasses. I have seen them advertised as such since. Basically, it's the bottom half of progressives moved up. The long distance vision is good enough to drive with, but the vision for the distance between you and the computer screen is perfect! I love mine. I just keep them on my desk top. They're a real neck saver!

 

My pet peeve is when people litter or leave their dog's droppings in the park. I hate walking in the park with lots of dog ****.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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I can't believe anyone would be so rude as to push you out of the way -- even when my cart is blocking someone, they usually ask ME if I will move it. Wow, that really takes the cake. :angry:


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hey Janey,

What a great idea!, seein how I am now addicted to the Puter lately,

A new peeve of mine yesterday- Hominy corn shoppin- Stores haven't heard of it & don't carry it here!

still seein RED ha ha ha

Sandra

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PENNY PEOPLE ARE IGNORANT & RUDE

I think we should hound NBC- CBS- CNN and request a TV comercial with a re-play of you experiences, to educate the "Low life Blee Blee Beeps"

in this rude & heartless world!

My hands don't carry much weight and I was in a Major grocery store, and saw a man in a wheel chair with a seeing eye dog and a magnifiying glass reading what he was trying to see, I told him, Let me help you, he told me everything he needed and we chatted and strolled around the store , he really appreciated the help, so much that I ened up getting a big push cart for all his groceries! It would have taken this man 3 trips to the store with his big magnifying glass, to get what only took 15 minutes of my time, and I enjoyed his conversation! I waited ouside with him for the Handy Dart Shuttle bus that took 1/2 an hour to pick him up to take him home! I realize every day that I AM LUCKY!

Its a CRUEL world....

Sandra

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Penny,

Your experiences are unbelievable! I'm sorry that you have had to deal with such people! This world needs more people like Sandra that actually help others rather than ignore them. I know when I wear my oxygen into stores, many people ignore me when I smile at them; but then I can go into the same store without it and the people that ignored me before, now smile back. It's very strange how people think only of themselves and have no understanding of "handicap" and what it means.

 

So that brings me to another of my pet peeves - I think we ignore our neighbors way too much, so I have this thing that I always smile at people on the street, in the park, in stores, etc. I've made it a challenge to get them to smile back. Sadly enough I find it's only about 50/50. I find it very sad that people don't know that when you smile, you feel better.

 

Big smiles to you all, :VeryHappy:


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Oh, Dear Penny, if those people could only realize what they do. They have been scruffed, and very well I might add, by Janey and Sandra, so I have nothing to add!

 

Sandra and Janey, I'm with you both. I also try to help those who need help whenever I'm shopping. As you mentioned, Sandra, it only takes minutes and it can mean everything to the person you're helping... Plus, one can never have too many friends, I always say.

Yes Janey, when folks smile at me, it makes me feel good, so I've always tried to do as you do, smile at others. Never know how special that is form some.

 

My pet peeve: Folks who throw trash out on the street! We have a fastfood strip just a few blocks from where we live. Invariably, our side street is most traveled, as a result and I'm gathering trash from the street! It's not easy for me to bend and even though it's their trash, I'm sure I'll need to invest in the long-arm-trash-picker-upper :angry:


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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About the peeve of becoming invisable when you have a disability...

 

People try to teach their children not to stare at people who are 'different' and I think it is more of a habit than a social stigma, but in teaching 'it is not polite to stare' I think that in many minds it has become almost an unwritten law not to look and what it ends up feeling like is not polite but ignoring.

 

I have children stare when I am out and about with my cane (on good days) or my wheelchair and I have done things to actually encourage it! I placed a brightly colored bell on my wheelchair (at first I put it there to get the hubby's attention in stores because he gets easily distracted by the bright shiny electronics :lol: ) and children are drawn to the idea of an adult riding in a wheelchair with a bright bell like moths. They ask questions and I answer them in simple bright terms. Their parents will often try to stop them and will appologise and I will say "it is okay, they are curious and I don't mind answering questions." That often leads to talking with the parents and the children asking even more questions. All involved and up leaving those experiences with a smile. (Of course, the child just 'has' to ring the bell a few times to see if it is real making us all laugh!)

 

My own children grew up with me being handicapped and as a result I have seen them streak off in a store (scaring me half to death at the time) only to discover that they are racing to help someone open a door or reach an item, because instead of being taught 'do not stare' they grew up 'seeing' everyone.

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Here's my bestest ever wheelchair moment. We were at the hospital's disabled door that was not working properly, my husband was trying to manouver me through when a man literally jumped over me to go through the disabled door before me!! Quality.

 

Of course there's always being ignored or treated like an idiot when in a wheelchair but there's too many of those incidents to mention!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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hey ladies!

my pet annoyancce is when I attend for a hospital aqppointment, the consultant (seeing me for the first time) always look up from my medical notes as I enter the room, and they say, with ever widening eyes "but you look so well!"

Well - if I FELT as well as I looked - I wouldnt be at this appointment in the first place! :emoticon-bang-head:

 

Oh well, I count my blessings, as I find people smile back at me when Im smiling!

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I'm with Janey on the subject of dog droppings in public places! We always, always clean up after ours. I hate being glared at by people who haven't realized what the plastic carrier bags tied to the leashes are for.

 

Hmmm, my pet peeve is all those people who seem to want to do everything so late in the day that whatever energy I have is long gone, the brain has turned to mush, the muscles are like limp spaghetti, and the temper is on a really short fuse! And then they wonder why I'm crabby~wacko.gif


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Jeannie,

Sandra callin

I too used to "tie Poo bags" to the leash, not any more! Do you have a small zippered (cloth) cosmetic bag- get a thread and needle out, sew one end of the bag to the leash up near the handle, I squish 20 bags in ours!

Just a Tip

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Good morning Sheryl

What's wrong with us , we are night owls! No wonder I am dazed by noon! I wish we could both sleep a FULL night SOON!

 

Hey Like your new Photo but your eyes still look BLUE to me! , I copied you and tried to change Pic, still trying....

 

I've been up since 1:30 am! UGH Tired of being tired- really!

 

Ate tooo much turkey yesterday, been trotting all night...Hey aren't you off to Sunny warm weather today? You know ... Leave the cold? We go to Mayan in early Nov. I could go now , soooo Cold, BURRR

 

 

Talk to you later (trotting!)

Sandra

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Hey Debbie I forgot all about the "you look so well!" statements. I just smile and think if I looked how I felt you'd be embalming me! People have no idea.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Here's one!

 

How about people who like to pronounce that our illnesses are because we are somehow emotionally deficient and "not dealing with [our] issues"? :barf: That these "issues" are manifesting in our bodies and as soon as we "confront" them and "own" them we will be magically "healed". :fairy:

 

They speak to all ill people from on high as though we have failed. Yep, if only we were as together as those enlightened beings we would not "need" our illness to "teach" us a lesson. :sick2:

 

Very clever philosophy where they can make people feel even more depressed because they can't change anything. :crying:


Charliehorse

 

Life is better with Jeeves and Wooster

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Charliehorse you forgot one...being overweight. Amazing how many people on this forum have been told all would be well if they shed a few pounds and what did they expect they are afterall overweight. Funny how many people who were supposed to attribute all their ills to weight issues in fact had this thing called scleroderma!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Today's pet peeve: unpredictability. Yesterday I could hold a cup of hot soup and eat it slowly. Today a cup of soup felt like a rock and hurt my wrist unbearably.

 

My nature is that I function best 'if this, then that'. I like reliability and order (except in my garden). Never knowing which joint will hurt or which joint will not want to bear weight today is soooo frustrating to me. And really I know it's a small thing. It just happens to be my pet peeve.


Northend Poet

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Oh, yes, I did forget that old turnip, Amanda. Weight prejudice, new-age "issues", the old stoic "just get over it" attitude, the list really is endless, isn't it. One day, one day in the very distant future we hope these people will have an epiphany and finally show a little understanding. :rolleyes:


Charliehorse

 

Life is better with Jeeves and Wooster

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Hello all,

Amanda, I just read your comment about how well you look, and the embalming thing, I laughed so hard I almost choked on my morning coffee. After a night of no sleep, I needed that laugh, so I wanted to thank you. I have also heard about my weight, I admit, I love chocolate, I eat alot of it, I was always thin until my thyroid went, then my body starting hurting and this aweful fatigue set in, cutting my daily activities to just must do chores, and then rest for 2 hours. And I am ashamed to admit that I smoke, so my Doctors have a field day with making me feel as low as a person can possibly go. It is quite evident to me that when I go to the Doctor, In their minds I am not worthy of treatment. Now it seems they would prefer to label my fatigue and pain, depression, a battle with them seems almost impossible to win. Thanks again for the laugh. :flowers:

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Imagine, I know what you mean when it comes to my weight and the doctors. My doctors blame EVERYTHING on my weight (or smoking).They make me feel as though because I'm overweight that maybe I don't deserve to be treated medically. My doctor basically told me last week that I'm fat and lazy.I guess if I was skinny I would deserve to be treated with respect.

 

Sherion

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sherion,

It is sad isn't it, I have always taught my children to give everyone a chance, respect others, and help out those in need. I take them with me to donate food to shelters, blankets to animal shelters, and toys for needy children. I work hard and I try to do things the right way. To be treated like you deserve what you get because of weight, or smoking isnt right. I battle my weight and the smoking everyday, I dont want to look or feel this way, but I have accepted it and I try to be happy with who I am, But I can't help but wonder who is worthy of respect, we all, including them, do things that arnt nessicarily good for us. Do they enjoy a few drinks, do they drive too fast, did they eat bacon or a donut this morning. I think these doctors need to go back to school and get an education in compassion, then maybe they can say they were trulely succesful in life. I say all this but when it comes right down to it, they can still make us feel so horrible about ourselves. Seems so back words. On the bright side, we can come here and vent, make friends, and earn points so we can create our own wonderful avatars, and no one is judging us. Makes the world a better place.

 

wishing you well,

Robin

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I am intolerant of LOUD commercials on tv, especially during a quiet movie that I have turned up.


Diffuse Scleroderma Diagnosed March 2009

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