sandra

Pet Peeves, Whats Yours?

26 posts in this topic

Good morning Sheryl

What's wrong with us , we are night owls! No wonder I am dazed by noon! I wish we could both sleep a FULL night SOON!

 

Hey Like your new Photo but your eyes still look BLUE to me! , I copied you and tried to change Pic, still trying....

 

I've been up since 1:30 am! UGH Tired of being tired- really!

 

Ate tooo much turkey yesterday, been trotting all night...Hey aren't you off to Sunny warm weather today? You know ... Leave the cold? We go to Mayan in early Nov. I could go now , soooo Cold, BURRR

 

 

Talk to you later (trotting!)

Sandra

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Hey Debbie I forgot all about the "you look so well!" statements. I just smile and think if I looked how I felt you'd be embalming me! People have no idea.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Here's one!

 

How about people who like to pronounce that our illnesses are because we are somehow emotionally deficient and "not dealing with [our] issues"? :barf: That these "issues" are manifesting in our bodies and as soon as we "confront" them and "own" them we will be magically "healed". :fairy:

 

They speak to all ill people from on high as though we have failed. Yep, if only we were as together as those enlightened beings we would not "need" our illness to "teach" us a lesson. :sick2:

 

Very clever philosophy where they can make people feel even more depressed because they can't change anything. :crying:


Charliehorse

 

Life is better with Jeeves and Wooster

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Charliehorse you forgot one...being overweight. Amazing how many people on this forum have been told all would be well if they shed a few pounds and what did they expect they are afterall overweight. Funny how many people who were supposed to attribute all their ills to weight issues in fact had this thing called scleroderma!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Today's pet peeve: unpredictability. Yesterday I could hold a cup of hot soup and eat it slowly. Today a cup of soup felt like a rock and hurt my wrist unbearably.

 

My nature is that I function best 'if this, then that'. I like reliability and order (except in my garden). Never knowing which joint will hurt or which joint will not want to bear weight today is soooo frustrating to me. And really I know it's a small thing. It just happens to be my pet peeve.


Northend Poet

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Oh, yes, I did forget that old turnip, Amanda. Weight prejudice, new-age "issues", the old stoic "just get over it" attitude, the list really is endless, isn't it. One day, one day in the very distant future we hope these people will have an epiphany and finally show a little understanding. :rolleyes:


Charliehorse

 

Life is better with Jeeves and Wooster

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Hello all,

Amanda, I just read your comment about how well you look, and the embalming thing, I laughed so hard I almost choked on my morning coffee. After a night of no sleep, I needed that laugh, so I wanted to thank you. I have also heard about my weight, I admit, I love chocolate, I eat alot of it, I was always thin until my thyroid went, then my body starting hurting and this aweful fatigue set in, cutting my daily activities to just must do chores, and then rest for 2 hours. And I am ashamed to admit that I smoke, so my Doctors have a field day with making me feel as low as a person can possibly go. It is quite evident to me that when I go to the Doctor, In their minds I am not worthy of treatment. Now it seems they would prefer to label my fatigue and pain, depression, a battle with them seems almost impossible to win. Thanks again for the laugh. :flowers:

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Imagine, I know what you mean when it comes to my weight and the doctors. My doctors blame EVERYTHING on my weight (or smoking).They make me feel as though because I'm overweight that maybe I don't deserve to be treated medically. My doctor basically told me last week that I'm fat and lazy.I guess if I was skinny I would deserve to be treated with respect.

 

Sherion

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sherion,

It is sad isn't it, I have always taught my children to give everyone a chance, respect others, and help out those in need. I take them with me to donate food to shelters, blankets to animal shelters, and toys for needy children. I work hard and I try to do things the right way. To be treated like you deserve what you get because of weight, or smoking isnt right. I battle my weight and the smoking everyday, I dont want to look or feel this way, but I have accepted it and I try to be happy with who I am, But I can't help but wonder who is worthy of respect, we all, including them, do things that arnt nessicarily good for us. Do they enjoy a few drinks, do they drive too fast, did they eat bacon or a donut this morning. I think these doctors need to go back to school and get an education in compassion, then maybe they can say they were trulely succesful in life. I say all this but when it comes right down to it, they can still make us feel so horrible about ourselves. Seems so back words. On the bright side, we can come here and vent, make friends, and earn points so we can create our own wonderful avatars, and no one is judging us. Makes the world a better place.

 

wishing you well,

Robin

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I am intolerant of LOUD commercials on tv, especially during a quiet movie that I have turned up.


Diffuse Scleroderma Diagnosed March 2009

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Robin, It's so good to hear that someone understands how I feel. That's why I keep coming here. I don't post often but I learn something every day.

You're right, we may have a problem with weight or smoking but I don't drink, I obey all laws and try to treat all people with respect.

 

Sherion

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