• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Sign in to follow this  
Followers 0
Cheryle

Synthroid with Esophageal Dysmotility

9 posts in this topic

Has any one had this or a similar problem? I had my thyroid removed mid June due to Papillary Cancer. Was started on 175 mcg of Synthroid right away. After my first labs, it was increased to 200mcg, then to 250 and last week to 300!! Little scary when I read up on it that a doctor rarely has to prescribe such a high dose.

 

My Endocrinologist all along keeps asking did I miss taking any tablets?...because my levels are still too low. I have not missed any at all. Since I have to take it alone, with no food or other medicine, I even set my alarm to take at 7 am to take it well before I take all of my other meds with breakfast at 9am.

 

Then it dawned on me!!! DUH!.... just because I swallow the pill at 7, with dysmotility & my lax lower esophageal sphincter... it is probably still just sitting in my esophagus at 9am when I take my other meds with food. No wonder it's not at the correct level.I put in a call to my doctor this afternoon to tell him what I think the culpret is. The only solution I can see to avoid this, would be to take the Synthroid by injection. Anyone do this?

 

Thanks,

Cheryle

Share this post


Link to post
Share on other sites

Hi Cheryle,

 

Or, you could just take your dose at bedtime. As I understand it (and keep in mind I am only a thyroid patient, not a doctor) there is no magic to the time of day it is taken as long as it is consistent. And bedtime might alleviate the food/vitamins/meds/motility issues.

 

My body is unable to properly convert T4 to T3. The synthetic thyroid hormones (like Synthroid) rely on our ability to convert T4 into usable T3. Some of us just can't do that, for whatever reason. So my levels perked right up when I switched to natural thryoid, also known as dessicated thyroid, such as Armour Thyroid. So another idea might be to try a different type of thyroid, as well. See our Thyroid page for more information.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Shelley,

 

Thanks for you response. No, bedtime wouldn't work either. I take half a dozen meds then. I'll look up the thyroid info.

 

Cheryle

Share this post


Link to post
Share on other sites

Hi Cheryle,

 

I had been taking Synthroid for years when it seemed to stop working I had all the same symptoms I had before I went on it. I also wondered if it was not getting down properly since most pills don't with me. What I did is chew up the pill, I set the alarm for 4am and then took the pill chewing it up, it dissolves quickly that way. This worked for me and now I just have it by my bed and take it first thing when I wake up and chew it up. I hope this helps. But if you try this I would start by chewing only a portion of the dose as there could be a possibility of getting too much. Of course I am not a doctor so I am just giving you my own thoughts, so you may want to check with the doctor.

 

Carol Lee

Share this post


Link to post
Share on other sites

Hi Cheryle ,

 

When my son got started on Synthroid this past June, I was told to give it to him one hour before breakfast. When he was admitted to the hospital in July, they told me it didn't matter what time of the day as long as it is 24 hr apart on a continuous basis. That hospital gives all their patients their thyroid pills between 3-4:00 in the afternoon. That is what I continued to do with Gareth and it works out fine.

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Cheryle, I haven't heard of anyone mentioning in our group that they take the Synthyroid injections. If you do consider taking Synthyroid in that manner it would be good to know how it works for you and if your levels remain at normal levels. I started out at 300mcgs of Thyroid medication 20 years ago. As the years pass and I needed less I am now at 175. I fluctuated on a couple occasions and had to take one and 1/2 pills every other day to increase my doses at times. It is a fine balance to keep our bodies honed to perfection. We all live in hope. I hope your meds starting working better to keep all systems working properly.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Thanks for all of your replies. I spoke with my doctor and he agrees with me that it is most likely that since the medication isn't getting to my stomach with my Lower Esophageal Sphincter working sporadically, it is mixing with my food and other meds when I take them hours later. It doesn't matter if I would chew it or even if it were a liquid to swallow, that valve only opens when it wants too!! I'm to stay at 300mcg now, and he will test me again to see if I'm at a good enough level or if I need to come in for a weekly IV.

 

Cheryle

Share this post


Link to post
Share on other sites

Hi Cheryle,

 

Sheryl mentioned the injectable Synthroid, which should work for anyone who has the difficulty you have.

 

Thanks, Sheryl...even though I don't have the need for synthroid, I really like that it's available via injection. Great information! :thank-you:


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0