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New Best Friends

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We all know those certain 'items' that we fought against getting, because to get one meant that we had a problem and we were 'getting by just fine'?


I will start the ball rolling with a few of my own-


My shower seat! I battled against this one for years because having to sit in the shower seemed like admitting that I could not care for myself. So what if I had to sit down on the shower floor because I was about to fall then wait there to get my strength back... or if I took a bath then had to roll over the edge of the bath to the bathroom floor, flopping down like a landed fish! I was not going to get one of those things! Then I did (or rather the hubby did after I fell one too many times for his comfort) and.... I wish I had years ago! This thing is great!


The toilet seat raiser- once again, this is something I associate with the elderly and I wanted nothing to do with it. The thought that I needed an aide in that most basic of places was just too much. Yes, getting up and down was very painful, but it was not something that I was willing to even talk about. Then I fell and hurt myself and the next day in comes the hubby with a raiser and I was furious! I would not use it... it was for 'old people'! Well... he put that thing on and refused to remove it and I had no choice but to use it. The difference was amazing... those few inches made a huge differeince in my life!


Handy holders- These are contraptions that you strap on your hands that have little velcro or elastic bands that you slip utensils into to grip them so that you don't drop them. I was picturing having spoons and forks tied to my hands and could see myself forgetting that I could not put the things down and scratching my eyebrow and annointing my head with mashed potatoes! Truth is, I use them only at home but I find alot of uses for them and they have probably made my life easier in ways never immagined! I use them brushing my teeth (no more dropping the toothbrush or fighting to keep it 'aimed' the right way) holding knives for cutting (not chopping, but cutting things like bread and other every day things) and even holding a brush.


Things that I would fight tooth and nail over while having a good old fashioned :temper-tantrum: have now become every day things that help me have a :happy-day: .

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Hi Penny,

Great Thread I will bet its loaded in the next week!

Never thought I would have to purchase Tears!

Or buy Wool Finger Puppets

And need a Fleece Blanky in the Car!

Gloves to get food from the freezer,

BBQ Tongs to reach in the cupboards

Sitz Bath! Whats up with that one!

Can't wait to hear what others will say!

Yackatchaz Later Penny

Your Pal, Sandra

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Hello All


Been there, done that, got the T shirt! I finally had an occupational therapist come and assess my needs having been unable to bath/shower unaided for nearly 2 years! Why did I wait...well initially I was still in denial and expected to wake up one day "normal" again! Needless to say this did not happen so my husband would haul me in and out of the bath, something I found very difficult although he did not mind.


Well according to the assessment I was entitled to a bath chair and initially I was not keen and expected some yellowish white contraption with a hoist! Eventually the bath chair arrived and is very compact and a pretty sky blue colour. What a difference it makes! :emoticons-yes: I can have a bath anytime I want, provided I have recharged the battery of course!


Ah yes the adapted cutlerly, I have a knife, fork and spoon with large handles on and I take them with me when I go out to eat. I also have the battery operated can opener, jar opener and peeler. They're all small things but they give me back some of my independence.


I suppose the assisted wheelchair counts as well because it enables me to get out and about. Mind you I still find it very difficult and get irritated easily when being pushed around in it. :crying: :temper-tantrum: No doubt that by the time I get used to it I won't need it anymore!


That's all folks!


P.S. Sandra what's a Sitz bath?

Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Ahh Amanda! You had to ask!

When you have severe acidic Diarea, after the first week there is not much skin left down near the "corn hole" So for releif you put this bowl thats designed to fit the toilet , fill it with warm water & some epsom salts and sit in it for five minutes- releives the burning & helps promote healing. Can be bought at most drug stores, and can fit in most bathroom cabinets. Comonly used after Hemoroid sugery or for people who can't reach this area to clean. Its actually really helps, Hopefully you won't have to go there Amanda.

Wipen again, Sandra

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Hmmm, a vast assortment of insulated mugs and cups, preferably with easy-grip handles and not too heavy, to keep hot liquids at least warm for the length of time it takes to drink them and the rare cold drink from setting off a Raynaud's attack or esophageal spasm.


Easy-grip kitchen tools.



A growing need for hard-surfaced floors because all vacuum sweepers powerful enough to cope with 3 border collies are far too heavy for me to use.


The carry-out service at the grocery store and a handicapped parking space~

Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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I received an early holiday gift from my father and his wife, a heated mattress pad for my cold bedroom, its heavenly :thank-you:


I turn it for a on high for a few minutes while I get ready for bed. Then I get in bed with it on low for a few more minutes until my hands and feet warm up, what a difference its made for freezen hands and feet!



Diffuse Scleroderma Diagnosed March 2009

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Mittens in the car at all times.


Candle in a coffee can.




Extra clothing in the vehicle in case I don't dress warmed enough.


I use a heater when I am at the computer, I use the heater when I take a shower, actually last year I started taking a shower in the smaller bath room because it's warmer than my master bath.


I use the blow dyer to warm up my socks before I put them on.


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