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To Tell or Not to Tell

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To tell or not to tell.


Disclosing your condition can provide certain benefits. Your employer will have an obligation to provide you with reasonable accommodation. That means you won't have to sneak around to doctors' appointments. Alan Shanoff. Toronto Sun. 09/23/09. (Also see: Work and Disability)


These items were posted in the ISN Newsroom. Check the Newsroom every day for the latest scleroderma medical and support information.

Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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What I was able to do was disclose all my information to the medical department at my work, so it's on their file, but due to privacy laws they aren't allowed to say anything to my employer unless I give them permission. That way I don't have to tell anyone anything, but if they get upset at my doctor's appointments, or if I have "too many" sick days or something like that, then I can always point them to the medical department and say that my condition was on file for some time already.


And just a couple of days ago I sent the nurse a list of all my upcoming appointments, so again, I could say that I had already told them about them.


Actually, it was the company doctor that started the diagnostic ball rolling by ordering bloodwork with my finger ulcers. Up until then I had just been told that maybe it was ezcema (looking back, I now have to ask what was my general practitioner thinking?!!). And not knowing any better, I didn't realize how serious it actually was.

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