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Sweet

Itching

33 posts in this topic

Aw, Pam, come on. They aren't trying to decide if YOU are special enough (you are, you're super, we know that, so should they!), they are just trying to decide whether your BUG is special enough. One needs to have the proper germs or ailments to see infectious disease specialists.

 

So, they need to ask. Is your Bug unique in any way? Is it something an internist or other specialist would be equally capable of handing? Does your Bug have any special education, like an advanced degree in Antibiotic Resistance? Is your Bug properly and potentially Lethal (that is worth 10 brownie points)?

 

Also, and most importantly, does the Buggee (the person co-habiting with the Bug) have the proper Credentials? Meaning, does their insurance company pay promptly and without complaint or undue paperwork imposed upon said Bug Expert?

 

Now, would you say there is anything still Bugging you? I mean, uh, besides me?


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Shelley, ha ha you are funny.

 

Actually I do have the proper germ to see them. This is their speciality. Most Infectious Disease Specialists are internists and that is the case with this group of 3. They are just so busy they can only take so many cases and therefore only take ones they feel would be interesting and out of the ordinary.

 

I've already seen 2 other providers that have tried for 6 weeks to get rid of it and evidently it's resistant to 3 antibiotic/anti-fungals -(everyone they tried so far), so it must be special.

 

I have excellent insurance so that shouldn't be a problem.....and as I type this I am still waiting. At least I'm done itching! (caused by allergic reaction to last drug they tried)


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Sweet,

 

You are certainly interesting and out of the ordinary (and I mean that in the best possible way) so they should see you just on that account alone.

 

Have you heard anything yet?


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hey Sweet

 

It's been weeks. Did you ever get that appointment? Just wondering if it has settled down, now that they have given it so much time to do so on it's own between both offices. Humnn...maybe it's their theory, if they wait long enough, they hope it will go away! :P


Sending good wishes your way!

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Hi Sweet

 

How are you now? I'm glad that you got rid of the itching but hope this other issue is being sorted for you.

 

Thinking of you

 

Buttons

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....still waiting.....

 

I saw my OB-GYN yesterday. I told him all about my maxillary fungal surgery, my coated tongue etc, during my exam he told me I had vaginal yeast as well, and put me on an oral anti-fungal for 14 weeks! Maybe by the time the Infectious Disease guys call me I'll be cured...we'll see.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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When I've had itch problems, the only relief at the time of the itch is cream containing benzocaine.

 

Though I can't explain it, I seem to itch less when I shower rather than bathe in a tub(?)

 

Craig

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I hope these suggestions help the itching. I have it so badly sometimes. I add antiseptic oils to my bodywash, I have tried a popular brand's new moisturizing body wash, it does feel like you are washing with a body lotion, the feeling of moisture stays in the skin. And last is my solution after a shower: I tried putting extra virgin olive oil in a spray bottle and spray my body while I am wet out of the shower. Drying time is required before putting clothing on, but this really gets into the pores that way. Good luck.

 

PS, if you want to PM me, I'll let you know the names of the oils and bodywash.

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When dryness or skin itching really gets to me, I like to take a bottle of baby oil, leave the inner seal of the bottle on and punch a little pinprick in it.

 

Then at the end of my shower, I squirt the baby oil on (actually, any oil will do) and the water helps spread it around; this is particularly good for an itchy back as you can squirt the shoulders and the water will make it cover the whole back.

 

But, children, before you try this or any other stupid trick involving oil in the shower or tub, BEWARE because it can make the floor of the shower extremely slippery! Be sure to use a rubber mat and super duper extra caution. Filling the tub with some hot water and dish soap afterward can clean the path for the next victim person taking a shower.

 

So I think goldengirl's suggestion is even better, using a spray bottle after getting out of the shower. Certainly safer, by a mile.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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I like goldengirl's after-shower oil trick too and I'm going to say a kind word for the extra virgin olive oil. I look for the palest colored one on the shelves (least odor) and buy it in small bottles so it doesn't go off before I've used it up on me, not the salads. For some strange reason, I have a problem with the mineral oils, but not with olive oil. My skin likes it and so does my hair. When I've managed to fry it to a crisp with the blow dryer, I'll oil it up, stick on a shower cap, and let it sit for a while before shampooing it out. It kind of reconditions my hair, but the best thing is that it stops my scalp from itching for a while.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Yippee!!! I'm glad they finally gave you an appointment Sweet! Good luck!


Sending good wishes your way!

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Glad you've eventually got an appointment, it does seem rather a long time though if it's infectious.

 

Take care Buttons

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