amberjolie

Sooooooo Tired....

7 posts in this topic

Wow. For the past week I've had a flu/cold thingy, so of course that takes a lot out of you, and added to my usual severe fatigue, I was having moments when I thought I'd fall asleep standing up! But the past 3 nights, my son has had an ear infection (I think I'll bring him into the clinic today because he now has a fever with it), and so has been up pretty much half the night. Yikes. And hubby can't help out because he's battling his own issues with chronic sore throat and mouth sores on top of his auto immune condition which also makes him tired.

 

I'm just soooooooooo tired. :emoticon-bang-head:

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YAWN... :emoticon-insomnia: After the clinic , I hope your son will get some quick releif! Then all 3 of you can have a well deserving nap, oh you poor thing, I just don't know how you do it, I don't have children and I can't imagine how over exhausted you are, I give you Amber a Five Star award! *****

You are a great Mom Amberjolie :) its one thing to be battling your disease, but being a Mom is a whole new ball game added into the scenario! You always find the strenth and I give you sooo much credit & respect. You are amazing in my books! :emoticon-hug:

Wishing comfort for the 3 of you! :flowers::flowers::flowers:

Take care Snookums, Sandra

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Hello Amberjolie

 

I feel tired just reading your post...no wait a minute I feel tired anayway! :lol: You are one of many sclero mums on this forum and I just take my hat off to all of you who have scleroderma and raise children. I agree with Sandra you're amazing.

 

I hope you get some sleep soon and take care.


Amanda Thorpe

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Thanks to both of you! :) I wouldn't call it amazing; it's more like survival. You have to keep going, because you really don't have a choice. I'm sure everyone on this board would understand that in their own situations. True, I have children in the mix, but at the same time, the stuff I've been having to deal with has so far been quite mild compared to what a lot of others on this forum have been facing. So whoever we are, whatever situation we're in, we just keep going...

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Amberjolie, sounds like you could all do with some rest and recovery time in bed. Can anyone help out with the household and give you a break? :emoticon-insomnia:

 

Im currently staying with my daughter and my 2 grandchildren. I'm totally shattered, but want to visit while I can muster the energy.

 

When I had my 2 daughters, I only had a couple of autoimmune conditions to deal with, now I'm falling to pieces since they've grown up!

 

I couldn't have kept up with toddlers if Id had my sclero as well when I was a young mum, but I can help out with grandchildren in short energy spells and then rest a bit.

 

best wishes Amberjolie, and thanks for the message about Buster. :-(

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Isn't this fatigue terrible though? It's so hard as it hits you like a ton of bricks and your eyes can actually hurt they are so desperate to close. I am good in the morning, even though it's hard to get up but I force myself. But by 1:00 I am done for and have no choice but to give in to a nap. Even after taking a nap I'm still exhausted. I can't wait until supper is done and all cleaned up and I can get in my pj's and curl up on the couch where I then decide how long I can stay there until I give in and crawl in my warm comfy bed. The hard part for me is I would give anything to fall asleep and stay asleep the entire night. But unfortunatley that's not the case for me. I suffer from terrible pain in my legs and arms and reflux so one of those usually slams me awake during the night and I'm forced to get up and treat it with meds and sometimes walk around for the leg pain.

 

I discussed this with my rheumatologist at my last apt. He said that this is such a constant complaint with sclero sufferers and unfortunately there's really nothing they can do to treat it. He said it just seems to be a constant issue he keeps hearing from his patients. So I guess there is some comfort in knowing we're not alone in this.

 

Warm hugs,

 

Peggy

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Hi Peggy,

I'm so sorry your pains wake you up at night! That would not be fun. My big problem is that I can't really nap in the day (I work full time and become mom again when I get home), and in order to get everything done in the day and still spend some time with my husband I don't get to bed until between 11 and 12 at night, then I have to wake up at 6. My kids are usually pretty good at sleeping though the night, but the odd time one of them has a nightmare or something, which disturbs my sleep more. But I think I'd prefer that over having to deal with pain through the night...HUGS to you.

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