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campos3001

New Member - Morphea

4 posts in this topic

Hi all. My name is Michelle and I was diagnosed with localized morphea a few months ago. I am 32. I live in Salem, OR and I see a family practicioner in the next town over. I believe the only reason that he diagnosed my condition so quickly was due to the fact that he took over the practice from my previous physician who was retiring. He was looking with fresh eyes I guess. My former physician thought that all of my symptoms were due to the fact that I had deep vein thrombosis (dvt) in my leg during pregnancy, which caused loss of blood flow to the area. I have also had a few infections in my leg, presumably due to the dvt. I have a host of other health issues, which may or may not be related to the morphea. I have terrible acid reflux issues, high blood pressure, extreme edema, and depression/anxiety. The only thing that is not a new issue is the depression/anxiety but it has been worse since the diagnosis. I also have some odd hormone levels, although the endocrinologist I saw was absolutely useless. Talk about a doctor that should have gone into research without patient contact! I have also been attempting to lose some weight but with all of the other issues I have my nutritionist and physician are just happy I am maintaining.

 

I guess I have had enough of suffering from this without anyone really understanding what it is. No one that I know has this, so I am reaching out here since you all can understand this. I also need some answers about what is going on with me and if what I am physically feeling is normal. I almost called my husband home from work last week to take me to the doctor because the pain was so intense that I was in tears. And the horrible itching is nearly unbearable. Until coming to this forum I thought I was allergic to the patches my doctor prescribed, which are the only thing that touch the pain without drugging me up.

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Welcome to our ISN forum Michelle, Smiling Barb, Tasha, and anyone I may have missed. Sorry you also share one or more of the illness' we each may have. Enjoy browsing through the medical section asking questions and those with morphea also may be able to help with easing your symptoms. Smiling Barb, sorry to hear that you are in a wheel chair because of a fractured leg. With modern medicine you would think their would be knowledgeable ways figured out to fix it properly. You all have come to the right place for support, soft comforting hugs. Also new ways to help relieve any issues you are dealing with that your doctor hasn't been able to figure out yet. Some of the people here have suffered greatly to get the treatment needed. Some results had simple cures or ways to ease the pain. Enjoy all your new friends here as we can listen, learn, and help each other when possible.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Michelle,

 

Welcome to the Forum! You now "know" quite a number of people with morphea and even more with other forms of scleroderma, so you don't ever need to feel you are alone again.

 

First, let me give you the link to Morphea where you can find a lot of information about this form. I'm sure others will chime in with personal experiences too. The other link I want to give you right away is to Pain Management. From my own experience, once you can get that under control, other things become much more manageable.

 

It seems I'm in a linking mood this morning! rolleyes.gif The last link I'm giving you is to our Guidelines and FAQs. Please read the Guidelines - we're a moderated forum and the Guidelines will help you avoid the dreaded editorial red pen.

 

I'm really glad you found us. It's a shame that you needed to, but it's always nice to have a new friend.

 

Warm wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hello Michelle

 

Welcome to the forum...you are not alone!

 

I have morphea and systemic sclerosis, both of which can itch like mad. Your best bet is to get your pain under control, as Jeannie has suggested, because once you do it makes an incredible difference to your quality of life and ability to cope with the rest of your illness.

 

It is difficult having a condition that most people have never heard of but now you have found this site you are home among fellow sufferers.

 

Take care and keep posting. :bye:


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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