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cordy

Ileocecal Valve Syndrome

4 posts in this topic

 

Has anyone had a diagnosis of ileocecal valve problems? Since I have issues with my esophagus, I'm wondering if this isn't just an extension of that...literally!

 

I was diagnosed with cREsT about 5-6 years ago and do have severe GERD and watermelon stomach.

Just wondered if this was more of the same?

 

 

Thanks for any responses...

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Hello Cordy

 

The only person who can really answer your question would be a doctor which counts me out as I don't even have a first aid certificate!

 

I did do an internet search on the ileocecal valve which allows digested food to move from the small intestine into the large intestine. Problems occur when the valve either stays open allowing waste products to go back from the large intestine into the small intestine or being stuck closed constricting waste products from moving from the small intestine into the large intestine. An unpleasant situation either way!

 

Now as a layperson (no medical training) I do wonder how the movement, or lack, of digested food between the intestines would effect the eosophagus and I didn't find eosophagial issues as a listed symptom of ileocecal valve problems.

 

I hope this helps and do please discuss with your doctor.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Cordy,

 

I would like to take this opportunity to welcome you here!

 

May I ask...Were you diagnosed with IVS?

If so, I agree with Amanda. Your doctor is the one to best answer your question.

 

Please keep us posted, if you would? We look forward to hearing from you!


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Cordy,

Please keep in mind that you could stuff all my medical training in a small pill bottle, and still have some space left over. As I understand it, the ileocecal valve can be affected by scleroderma, usually along with bacterial overgrowth syndrome (see Bowel Dysfunction in Systemic Sclerosis). I'd assume you must be under expert care to have gotten to the point of even knowing what an ileocecal valve is.

Systemic sclerosis (scleroderma) can affect the entire gastrointestinal tract -- from stem to stern, as it were. With GERD and watermelon stomach (GAVE), you were only halfway there. So I hope that you also have a scleroderma expert on your medical team?

How are you coping with all of this?


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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