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      Upgraded Sclero Forums!   05/18/2017

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Not yet diagnosed, but frightened

28 posts in this topic

Hi Bee ,


I was thinking of you today because of my son's *issues* with depression. Gareth is now 21 years old and has been seen by a regular, pediatric psychiatrist since he was 10 years old because of his autism/OCD behaviors. When he developed the symptoms for Sclero, even his regular psych doctor didn't pick up on the depression until he consulted a fellow psych doctor who specialized in autoimmune induced depression. Like Barbara said, it may take a couple of tries with different meds to get the right one to work for you, but it can make all the difference in the world on how you look at life and how you will fight this disease. A psych doctor once told me that each psych med out there only works on 10-20% of the population, that is why there are so many of them and why the first one may not work for you. Don't give up....keep trying.


Take care, Everyone.


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Hello Bee,


I am in the same situation as you. I am not yet diagnosed, but have many of the listed symptoms for Scleroederma. I also have taken very little medication through out life. I agree that this is a very scary time. Please keep us informed. Grim247

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Hello Grim247


Excellent name by the way and welcome to the forum!


Awaiting a diagnosis is very difficult particularly when you are living with a bunch of symptoms that you long to give a name to so they can then be treated.


Have you been trying to get a diagnosis long, I know many on this forum who waited years. Scleroderma can be tricky to diagnose, it has many different symptoms that can present at different times and everybody experiences it differently. Of course you already know this!


Take care and keep posting

Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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