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munstergirl

My 8 year old daughter has linear/morphea

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Hi, I'm new. I have just come back from the hospital with my daughter who has linear morphea. I don't know much about it .The doctors want to put her on either these tablets methotrexate hope that's right or the UV rays.

 

She is only 8 but even in 3 months it has doubled and spread on her body very fast. Has if anyone heard of these tablets or using the UV rays? Please let me know.

 

Thank you so much so much,

 

angie

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Hi Angie,

 

Welcome to the Forum.  I'm really sorry your daughter has been diagnosed with morphea.  That's got to be tough on you, her, and your family.  Are any of her doctors scleroderma experts?  I think most of us feel that it is important to see a scleroderma expert, even if it is only as a consult.

 

We have a number of links that might be helpful to you and I'll give them to you below.  We also have members who have personal experience who will probably chime in.

 

So here come the links:

 

Morphea

Methotrexate as a treatment for morphea

Phototherapy (UV, etc.)

 

and one on Methotrexate itself.

 

Please post as often as you like, ask any question that comes to mind, and let us get to know you.  I'm sending the warmest of hugs and very best wishes to you and your little girl.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Angie,

 

Welcome to Sclero Forums! I'm sorry your daughter has linear/morphea scleroderma and send my best wishes to both of you. Look at the links Jeannie gave for some excellent information. And please be sure that she is seen by a juvenile scleroderma expert (if she isn't already).


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Angie

 

Welcome to the forum although I am sorry your daughter has scleroderma, it's hard enough to deal with as an adult let alone as a child.

 

You've already been given excellent info and links so I'll just say keep posting and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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