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katiesmom101

Skin issues with MCTD

5 posts in this topic

I am going out on a limb here and have no idea if anyone will have advice. Years ago I was diagnosed with mixed connective tissue disease but was told there was nothing that could be done about it and nothing that would probably ever come of it but cold hands in the winter. Well, I'm now having skin issues that have stumped two dermatologists.

 

Over the past year the skin on my cheeks and forehead looks like it is losing elasticity. It looks almost pitty and bumpy. It can be stretched back out smooth but then goes back to being bumpy. It isn't itchy or rough. They took a biopsy today so we'll see what it comes back as but my mom is convinced it has something to do with the MCTD. Does anyone have any experience with anything like this? The dermalotogists have never seen anything like it. They gave me Retin-A.

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Hi Katiesmom,

 

Welcome to Sclero Forums! I think we'll need to wait along with you to see what the results of the biopsy are, and hope you let us know. Generally speaking, as I understand it (and please bear in mind I have no medical training at all; I mean, it's not like I haven't tried to learn but it seems to go in one ear and straight out the other) -- the skin tightening associated with scleroderma causes an absence of pits and bumps. Rather the affected areas become very smooth, and often shiny too. So for example, when scleroderma affects the forehead, usually what is noticed is a clearing up of any wrinkles.

 

I know how tedious it is to wait for biopsy results of any sort. Been there, done that, but hopefully this will turn out to be something separate, and easily remedied, too. Let us know how it turns out, okay?


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Katiesmom

 

I can't add more to what Shelley has already said but wanted to say welcome to the forum. Now you've got us all intrigued do let us know what the biopsy says.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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I am an old member, but have not posted in a while. do you think the skin bumps could have anything to do with Lupus. I was diagnoised with MCTD, lupus, scerlederma, raynauds, and polymositis. It could be a combination. doctors really are at a loss for issues when they overlap like this. good luck, and yes, keep us all posted.

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Hi Katiesmom,

 

I haven't got anything useful to add either, but wanted to welcome you to the Forum. We all love a good medical mystery, so will be anxious to hear the results of your biopsy. Out of sheer curiosity, how big are the bumps/lumps?

 

Best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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