• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Sign in to follow this  
Followers 0
Kamlesh

My encounter with H1N1

15 posts in this topic

I thought my experience will benefit some of you.

 

I started some symptoms of a cold on Saturday on 11/21. I thought it is minor cold, so took over the counter medications for a cold for a couple of days. It started becoming worse and worse accompanied by congested chest and severe cough. Tuesday, I went to my primary physician and was diagnosed right away with H1N1 and started five day dose of Tamiflu. First three days were so horrible that my lungs were barely working. Difficulty in breathing and severe itchiness in my chest, pounding head, severe body ache, and mild fever were the main symptoms. Now exactly after a week I feel better, but am still very weak. I am not sure if I will be ready to go to work on Monday, but I at least need to go to my primary physician to get H1N1 vaccination. He was kind enough to save one for me from the few vaccinations he received. I was trying to get H1N1 vaccinations for the last two months, but could not get it.

 

So any of you that have the opportunity to get H1N1 vaccination, I would encourage you to grab the opportunity and save yourself from so much pain. I had taken my regular flu vaccination in early October. My primary physician received only 10 dosage of H1N1 this year so far.


Kind regards,

 

Kamlesh

 

 

Share this post


Link to post
Share on other sites

Hi Kamlesh ,

 

I am sorry to hear that it was so painful, but you do not need the vaccination now since you have had the H1N1. Your body has build up a natural immunity. Hopefully, you can sleep in today and get plenty of rest.

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Kamlesh,

Thank you for sharing your H1N1 experience. It helps us to know what type of symptoms to look for. I'm so sorry that you suffered like you did, but am thrilled that you pulled through and within a week are considering going back to work.

 

You seem to be experiencing the same thing that I am as to the availability of the H1N1 vaccine. It has been so limited here and up until last week was only available to children, pregnant women and healthcare workers. Respiratory illness and immunosuppression was added to my state's list last week, so hopefully I'll be able to find one some where. I have 3 doctors looking for me. In the meantime, I stay pretty much at home. Since I work from home, it's easy for me to do. My clients are very comfortable with conference calls and very accomodating.

 

I hope you continue to feel better every day and that you don't have to deal with this again.


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Kamlesh, glad to hear that you are at least on the road to recovery. I'm in the UK and I think that the vaccine is generally much more available here. At the moment General Practitioners are vaccinating people in high risk groups- I had My H1N1 jab on Friday. The advice in the UK is to have the H1N1 jab even if you/your dr think you have already had the virus - unless it was actually confirmed by laboratory tests as being H1N1. So perhaps you should still have the jab?

 

hope you are feeling 100% soon.

Lizzie

Share this post


Link to post
Share on other sites

Margaret,

My doctor highly recommended to take vaccination for H1N1 even though I had one.

He rather went out of way to find one for me and reserved so I can take as soon as I feel OK


Kind regards,

 

Kamlesh

 

 

Share this post


Link to post
Share on other sites

So sorry you had to get the flu. I've heard it hits hard and hits fast. I was so lucky to get the H1N1 last Tuesday. It was an in and out and I was sooo glad to be able to get it. One thing for everyone to know too is to make sure you DON'T DO THE NASAL H1N1 as it's a live virus and we shouldn't have that at all. We need to get the shot form only. The shot needs almost 3 weeks to get into our system before it helps. I was told by my doctors (both the rheumatologist and oncologist) that in my situation because of the meds I'm on that the shot probably won't help a great deal but it sure can't hurt. I so hope and **** everyone is making the calls to their clinics to get on their priority lists as Sclero is one of the diseases that makes us a primary candidate to get the flu shot right away. I have seen on tv that it's kind of quieted down but I fear that this winter it could mutate in an even nastier strain and the more we can try to protect ourselves the better.

 

I so hope you are on the mend and feeling much better!

 

Warm hugs,

Peggy

Share this post


Link to post
Share on other sites

Boy do you deserve an "Aw Poor Baby" -maybe two. That sounds horrible- I hope you're doing better now. :emoticon-hug:

I haven't even asked about the shot yet- I did have the seasonal flu one a couple of weeks ago. I'm lucky to be able to stay pretty much at home and I have been trying to avoid going where there are crowds.

Share this post


Link to post
Share on other sites

Hi Kamlesh,

 

Thanks for posting that. I'd been dithering, but I think now I'll make a stronger effort to get the H1N1 vaccine. I live just outside a major urban area, but the vaccine is fairly hard to find here too.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Hi Kamlesh & Lizzie ,

 

That is interesting about getting the shot even though you have had the H1N1. My sister's son had the H1N1 two weeks ago and her primary care physician told her not to worry about getting the shot since she was his primary caregiver for 24/7 while he was so sick. Perhaps having the sclero/autoimmune diseases puts matters into a different, more proactive, protective mode. Gareth got his last month. I will keep you in my thoughts.

 

re, Everyoen.

MaRgaret

Share this post


Link to post
Share on other sites

re, Everyoen.

MaRgaret

 

LOL.......can you tell I had a kitten helping with the typing?!?!? I should have proof read!!!

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Kamlesh,

I am so sorry you were so sick with H1N1 and hope you have a good recovery. I get a regular flu shot every year and this year got the H1N1 at dialysis. A couple of years ago my husband got the flu and it knocked him for a loop. He gets a vaccine every year now and wants the H1N1 but can't get it because of the shortages. I hope everyone stays healthy.

miocean


ISN Artist

Share this post


Link to post
Share on other sites

Hi Kamlesh

 

I'm so sorry to read that you were so poorly with the H1N1 virus. It sounds like you had a really bad time with it; thank goodness you are feeling a little better now. :)

 

I had the first H1N1 jab last Wednesday & am booked in for another in 3 weeks time; in the UK they seem to do 2 jabs for people with compromised immune systems. :blink:

 

On balance & particularly after reading what a terrible time you have had with swine flu I'm quite pleased I made a fuss & insisted that my general practitioner included me in their vaccination programme! ;)

 

Kind regards x


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Kamlesh - I am so glad you have started to feel better. Please, please take care of yourself, don't overdo and be watchful for signs of worsening. I started not feeling well, with intense headache and fever, but no respiratory symptoms, the last week of October, went to the doctors after 4 days of it, was tested for Lyme disease as I'd had a tick bite 3 weeks previously, but it was negative. After 4 more days of continued headache and fever, the cough and body aches hit. Back to dr but they said it was too late for Tamiflu to work, was put on prednisone to help with the cough and wheezing (I also have asthma) and went to bed for 4 days. After a week and a half on the prednisone, the cough and congestion got much worse, back to dr only to find I now had pneumonia. Am improving day by day now, but it still hurts to take a deep breath. I am afraid of what kind of damage has been done to my lungs. I was able to get a seasonal flu shot in early October, but the HlNl vaccine wasn't available until after I was sick. My dr also recommended I get the vaccine as soon as I am off the prednisone for a week, even though they are sure I had HlNl. The only good thing about all this is that the prednisone has done wonders for my joint pain!!

To my fellow sclerodermians, take this novel flu very seriously, it is horrible, get your vaccines as soon as it is available to you!

Stay healthy,

red

Share this post


Link to post
Share on other sites

Kamlesh and Red

 

Sorry to hear you both got so sick but glad you are getting better. They say the H1N1 takes a lot out of you with that lack of energy for some time after wards as well.


Sending good wishes your way!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0