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debo_92

Ulcers

5 posts in this topic

I am wondering if you have an ulcer, mine (or what I believe are ulcers) are typically mild, how it looks as it heals? Mine seem to heal from the outside in. They heal in stages and it is sort of like the segments of a telescope if you look at them from the top when they are all pushed inside each other. Then after they heal I still have a thickened, smooth, patch of skin that is the shape of the outside of previous ulcer. I can still see evidence of ulcers I had 6+ months ago. Does this sound like a digital ulcer to you? :thank-you:

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Hello Debo

I have not had ulcers so can't comment personally but understand they are extremely painful. We have lots of information here about digital ulcers and we have photos of digital ulcers which may be helpful to look at.

I hope this helps and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi!

 

I had digital ulcers last year but not yet this year (hoping it stays that way!); mine were probably considered more like moderate.

 

I can't quite remember exactly how they healed, but I do remember the skin pinching in where they were, and having almost like calluses that I could pick out every so often.

 

Now, every place I had an ulcer has a scar that kind of has a telescopy look. My fingerprints are permanently altered - looking at my most severe one, the lines seem to contour towards the scar, like it's a black hole sucking them in. I have permanent nerve damage; if I press on the scars they still hurt a bit (although NOTHING like the ulcers themselves, which I'm grateful for!). And the skin at the fingernails is kind of messed up. It's like it grew up and stuck onto the nail a bit, so cutting my nails is a tad trickier, I can't go as far down without hurting myself.

 

And these are from ulcers that healed about 6 months ago as well, so I think they're permanent scars.

 

Does that sound like what you have?

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That sounds just like what I have. I can still see the scars from some I had months ago. I know that when I have them I can't let water touch them. If I do they hurt so bad it brings tears to my eyes. Thank you for the responses so far.

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Hi Debo,

 

As long as we're on this topic, one thing I'd recommend for you (and everyone) is to take photos of symptoms like this. Before, during, after. Even tracking the healing or scarring phases.

 

As they say, pictures speak a thousand words. Plus they make terrific documentation in the event we ever go to a new doctor who is questioning a prior diagnosis. It is totally astounding the way some doctors will toss out everything ever diagnosed before, and begin again from scratch with only the symptoms that are present on that particular day.

 

That's when we truly appreciate having a copy of all our medical records plus visual proof that neither we, nor our doctors, were imagining anything. Think of it as an insurance policy, of sorts, one that will keep us from having our medical care derailed.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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