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waterview05

Starting a new medication

7 posts in this topic

Hi Everyone,

 

This is my second post and thanks for the supportive responses I received while in the intro forum.

 

I have diffuse scleroderma and my skin has been getting tighter by the day. I've been on plaquenil and colchicine, but no relief. My rheumatologist took me off the colchicine and tomorrow I am starting methotrexate.

 

I am hopeful that things turn around as I have been in so much pain from the skin compressing the nerves in my wrist and forearms.

 

Wish me well,

Kelly :thank-you:

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Hello Kelly,

 

I hope the methorexate (MTX) will work quickly for you and end the nerve pain you are having.

 

Good luck!

 

Cheryle

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Kelly,

Methotrexate was the first medication that I was on and it did a great job in slowing the symptoms. It did take several weeks to notice the changes, but when it happened, it happened. I hope it's sucessful for you. If you need to read some study about it and scleroderma, click here: methotrexate.


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hello Kelly

 

I've had a love hate relationship with the immunosuppressants I've been on. I started out with mycophenolate (Cellcept) and got on exceptionally well until month 10 when the dreadful headaches began, a side effect unfortunately. I persevered for many months but gave up eventually. After about 4 months off the mycophenolate I started methotrexate and again at first found it great but then I stopped taking it after about 3 months because it made me so tired (I think). Well I'm now back on it and am hoping I'll have excellent results like Janey and hopefully you will too.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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I so hope you have good luck with it. I'm on methotrexate to see if it can help with the terrible muscle pain. Well it's been a number of months and when I go back in January I plan on telling him it isn't doing anything. I also take cellcept and it has really helped loosen my skin and hopefully it's helping my lungs which get worse each time I do my PFT's. I guess I'll see if that's the case in January too. I unfortunately think I'm at the end of what they can try for me so the pain I have is something I think I'm going to have to live with. I wish you luck.

 

Warm hugs,

Peggy

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Hi Kelly,

 

I hope you find the methotrexate helpful!

 

In the meantime I'll try to wave my magic wand, see if it makes you a bit better. :fairy:

 

Did it work?

 

Oh, please tell me it isn't broken, as they are fresh out of them at my local magicland discount store.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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