Kamlesh Posted December 9, 2009 Today I went for PFT and my lung capacity went down from 73% to 65%. Trying to figure it out why it plunged so much in six months. Have an appointment with pulmonary specialist mid January. Quote Kind regards, Kamlesh Share this post Link to post Share on other sites
nan Posted December 9, 2009 Kamlesh, Do you think it could be because of H1N1? Didn't you have trouble with breathing when you were sick? Just a thought. Nan Quote Share this post Link to post Share on other sites
janey Posted December 9, 2009 Kamlesh, Nan has a good point. Since the H1N1 is a respiratory flu, you might still have some pulmonary limitations as a result of it. Also, you might look at changes in medications. I was switched to generic cellcept last spring and ever since my pft numbers have been dropping. My rheumatologist said that he has seen this happen with other patients even though the generic is suppose to be just like the non-generic. I get another pft next week, so I'm sure I'll be bringing this up to my pulmonologist. I hope your decrease is temporary and once you fully recover, you'll see things go back up. BTW - I FINALLY got the H1N1 vaccination yesterday, by pure chance. I couldn't find it anywhere last week, but yesterday I made a random call to my neighborhood drug store and was told that another branch across town had received a few and were giving them out. I jumped in the car and went got one. What an ordeal! Quote Janey Willis ISN Support Specialist (Retired) ISN Assistant Webmaster (Retired) ISN News Director (Retired) ISN Technical Writer for Training Manuals International Scleroderma Network (ISN) Share this post Link to post Share on other sites
Snowbird Posted December 9, 2009 Hi Kamlesh I have no clue either but want to wish you good luck with your upcoming appointment, perhaps the others are onto something about your H1N1? Keep us updated. Quote Sending good wishes your way! Share this post Link to post Share on other sites
Kamlesh Posted December 13, 2009 I had H1N1 week of November 23rd. I recovered, but then I was hit with something and continue to have body aches, congestion, and sinus. Just started antibiotic on advice of my doctor. But, I am not sure should these affect my lung capacity? Quote Kind regards, Kamlesh Share this post Link to post Share on other sites
Joelf Posted December 13, 2009 Hi Kamlesh I don't whether this is significant but I know whenever I've had a lung function test (& I've had quite a few now!! ;) ) I have always been told not to do the test if I've had a cold or any sort of respiratory infection during the previous 7 days as it can affect the result. Just a thought!! :) Quote Jo Frowde ISN Board Member ISN Secretary of the Board ISN Assistant Webmaster SD World Webmaster ISN Sclero Forums Manager ISN News Manager ISN Hotline Support Specialist International Scleroderma Network (ISN) Share this post Link to post Share on other sites
