Jump to content
Sclero Forums
barefut

Got Motivation?

Recommended Posts

Hi every one I'm new here. my name is Tasha and I can totally relate to what you are saying. I've been on a two week medical leave recently, not able to lift more than 10 lbs.

 

The pain in my back and ribs area made difficult to get from a sitting or lying position without extreme pain. I have limited scleroderma, and haven't heard of anyone having pain in this area.

 

I had to miss work work yesterday due to GERD in the night horrible taste that you can't get rid of, not able to sleep kept coughing was totally rung out the next morning.

 

It's so frustrating when you don't feel like doing things you want and need to do.

 

P.S Don't have my holiday tree up yet either.

 

Tasha

-_- -_- -_-

Share this post


Link to post
Share on other sites

Hello Tasha

Frustration should be a recognised scleroderma symptom!

I am sorry about the pain in your back and rib area, have you had your doctor check it out because if it's that severe you really should.

We have a page about GERD (gastroesophageal reflux disease) in particular prevention and treatment that you may find helpful.

I hope you get some relief soon, take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Amanda,

 

I had gone to the doctor for the back pain and he prescribed prednizone, and pain pills. He also put me 10 lbs. weight limit for two weeks which made me not able to work as I am a nursing assistant and lifting is necessary.

 

I usually don't have trouble with acid reflux in the evening if I eat light meal not to close to bedtime. This was one of the worst times I've had with it.

 

Thank you for you're reply. I really enjoy this site, I don't feel so alone with my health issues anymore, Thank you.

 

Tasha

Share this post


Link to post
Share on other sites

Barefut,

 

I hope you are feeling better these days. I remember in the not so distant past days like you describe. I too was working and had children that depended on me. I was a "workhorse" and keep everyone moving and everything in working and functioning order. It frustrated me to no end that I couldn't do the things I was used to doing or that I wanted to do.

 

But then something happened....I realized I was not Superwoman and didn't have a supply of Kryptonite. It was ok that the clothes didn't get washed, the floor mopped or vacuumed. I did what I could and allowed my body to do it's thing while encouraging my mind that "this too would pass". Because I was not diagnosed yet, none of my doctors would give me anything for the pain.

 

I began to let others help me which was hard for me to do, even family members; I allowed my able bodied teen sons to help out a little more and found they enjoyed soup and sandwich night as much as I did. I did not cook regularly for almost a year while going through the fatigue and pain. Rotisserie chicken, heat and eat potatoes and frozen steamable veggies also became a staple.

 

Don't beat yourself up about the current limitations. Accept them and do what you can for the time that you can. If you get down again, just let your sclero family help to pick you up!

 

Hugs to you! :emoticon-hug:


I may have Scleroderma, but Scleroderma doesn't have me!

Share this post


Link to post
Share on other sites

Hi Smac!

 

Thank you for your kind reply. Yes, I am definately over the superwoman thing and after reading your reply, I realize that "superwoman" is relative. I strive to prepare the meals you describe as staples! We eat cereal a lot. :(

 

I have been working part time on FMLA and it has made a world of difference in my life in many ways! I am so grateful that it is available and I savor every productive minute at home as well as every precious extra moment with my boys. It's nice to be able to take a nap now and then too!

 

Thank you again for your encouraging words!

Love my sclero family :wub:


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...