cordy

Ibuprofen not advised for autoimmune diseases?

9 posts in this topic

Hello,

 

I just had a nurse friend tell me that she was told that ibuprofen should not be taken by anyone with an autoimmune disease. Does anyone out there know anything about this? My doctor has not said anything one way or the other and she diagnosed me with cREsT about 6 years ago.

 

Just wondered...thanks.

 

Happy Holidays to all and health and healing for 2010 and beyond!!!

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Hi Cordy,

 

That's a great question. As it happens, any or all of the NSAIDs can be problematic for scleroderma, depending on our individual symptoms, other medications, length of time taking them, and strength of dose.

 

We have a wide variety of warnings on our page, NSAIDs, Anti-Inflammatories, Pain Medications.

 

It's terrible, but very common, to die of avoidable side effects of medications, especially over-the-counter ones! So it is a great idea for all of us to discuss our pain or inflammation options with our medical team to be certain that we aren't doing ourselves more harm than good.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Cordy,

My doctors differ on some of my medications. I take Ibuprofen (Motrin), one doctor prefers me to take something stronger and with pain medication. The pain medication makes me loopy, or dizzy and slightly nauseous. She worries about the effects of Motrin on my stomach. I prefer the effects and relief I get from Motrin unless the pain is serious then I switch. Then I don't mind sleeping but normally I like to be with less pain but not sleeping and able to function properly. My other doctors say as long as I take the Motrin with even a cracker then the Motorin won't ulcerate the stomach or cause any problems. For me I take meds for acid reflux also, so I am told my stomach should be protected. Just eat a bite of something and drink a full glass of water and do as your doctors prescribe.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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I was diagnosed with crEsT a year and a half ago, and have since developed Raynaud's, finger swelling, and bilateral carpal tunnel syndrome. My diagnosis was made after extensive evaluation of a GI bleed (from esophageal erosions) that was probably caused in part by ibuprofen and Naproxyn, which I was prescribed for joint pain. I have been advised never to take any NSAIDS again.

red

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I was having problems when I go to bed with hip and leg pain. My doctor told me to take one ibuprofen every day (with food). It's been a great relief and I no longer have that problem. I take alot of meds for my acid reflux and stomach but so far have not had any problem with the ibuprofen. But we are all different. - Lisa


Life is NOT meant to be a struggle. Life is meant to be joyously abundant.

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I would never take ibuprofen again as long as I live and it's nothing to do with the scleroderma! I determined it was causing me rebound headaches and when I advised a doctor of this when I was in hospital he was in complete agreement with me. Once I stopped the ibuprofen the cycle of headaches I had lived with for years stopped...coincidence...I think not.

 

I also know it's frowned upon if you have high blood pressure (why Ma can't take it) and it's no friend of those with gastro issues.

 

Mind you some people find it helpful so it's a matter of personal choice.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Until I was diagnosed with Sclero I did take ibuprofen sometimes because my joints were so painful, but as soon as I was put on Prednisolone the aches and pains miraculously stopped amd the swelling in my fingers went down so I had no further need to take it.

 

I did query whether I should take it with one of the doctors but he said quite rightly that there should not be any reason to now.

 

Quite frankly I'm very loathe to take any more drugs (bearing in mind my poor liver is having to work overtime! ;) ) although I am at present on a short course of antibiotics as I've developed an infection (probably due to my immune system being compromised :rolleyes: )


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Happy Holidays everyone! This is a rather interesting topic and even more interesting to see the varied views. I was advised by my Sclero specialist not to take Ibuprofen or any NSAIDS when I was first diagnosed. I was an Aleve queen and felt it provided the fastest relief. I have since been using Tylenol and it's prescriptive derivatives when I've needed something stronger.

 

He never said why I shouldn't take it or maybe I just don't remember, but I will be sure to ask when I see him again in February.


I may have Scleroderma, but Scleroderma doesn't have me!

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