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piperpetpete

Pins/needles pain?

8 posts in this topic

Hey guys, just wondering if any of you have the random pins/needles feeling all over your body at times. I have the burning pain episodes in my thighs and sometimes arms after exercise mostly but the pins/needles thing just recently started and it seems quite active after exercise. I am still able to swim laps every other day for an hour and figured this was the least impact stuff I could do. I also still lift weights but only one day a week. Just wondered...any thoughts? :closedeyes:

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Hi,

I actually do experience that, but primarily in my neck, arms, hands and fingers. Sometimes in my thighs. There could be so many reasons why you are feeling this, and it might not be Sclero related. Mine is due to two reason, severe advanced degenerative disk disease in my neck, and also to thoracic outlet syndrome. If it continues, I would bring it up with your doctor.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hello Piperpetpete

 

I had pins and needles in my right foot when exercising and in my left shoulder from just sitting still. This was before I was diagnosed and now I don't get either, mind you I don't exercise now and don't sit as much as I'm usually sleeping! :lol:

 

Pamela's right though, it could be anything so mention it to your doctor and of course let us know what it is!


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi all,

 

My pulmonologist always asks me if I've had any tingling sensations, but I never have so I've never asked what they are related to! Since he started asking before I was diagnosed with scleroderma, my guess would be that the tingling is related to my interstitial lung fibrosis. Could be lots of other things too, I'm sure, since nothing is really simple when it comes to autoimmune issues :lol:


Sharon T.

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I sure hope that's NOT it but swimming an hour with no fatigue and no breathing problems plus had a clean lung CT scan in July, just wondered. I will bring it up with the sclero specialist I FINALLY get to see next month :emoticons-yes: Thanks guys!

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Hello Piperpetpete,

 

 

I too get that pins/needles feeling in my feet and arms. I get it in my arms when I am laying down. I get it in my feet when I am sitting for more then 15 min. or when I first start exercising. It will last about 10 or 15 min. until my body gets warmed up. I do a dance exercise class and try to lift some weights each week. I have asked my doctor but I never really got a response. It is very annoying at times.

 

Nina

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I have this off and on. This is how my sclero disease seemed to start. I had tingling of my hands and feet and then from there it went to where they went numb. This then went up to my knees. It was diagnosed for me as peripheral neuorapathy. The numbness for me has done permanent muscle damage up to my knees and we are hoping it doesn't keep progressing. In addition to the Scleroderma I also have Polymyositis.

 

I have the tingling off and on but I don't exercise like you do as I can't. I have constant terrible muscle pain in my legs and arms and if I do increased activity it makes the pain even worse.

 

I would definitely bring this up with your doctor at your next visit. I have no idea why we get this and whether it's related to the sclero or if it's from my polymyositis. I don't see my neurologist much anymore as most of my health care is now done through the rheumatologist and the accompanying doctors for the kidneys, lungs, heart and esophagus.

 

Warm hugs,

Peggy

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Yes, I had all of the above in the beginning, pins and needles, burning and stabbing pains in my legs but it all went away after a couple of years.....alice1

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