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tngrits

Newbie

7 posts in this topic

Hi to my sclero friends. I have been looking for a good, informative place to talk and to learn from others. I used to belong to another famous group but they worked so hard at getting much needed donations they seemed to forget the much needed support system. I know it is possible to do both. Your site seems to be a great site and I can't wait to start meeting people from all over the world. I have had the CREST form of scleroderma for about 20 years now. I am one of the lucky ones. It is progressing slowly. I have many other health problems also but am at a point that I need to know the latest on scleroderma.

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Welcome tngrits to ISN forums. Now, your forum forever more or for as long as you need fulfilling or wish to offer fulfillment to others. We have a great group of staff, and friends that feel like family. I take that back. They make you feel better than our own families most of the time. Our real families don't have a clue what we deal with day to day and week to week. They don't know how to give support or help us through a painful day. Here, someone will jump in and make you smile, or laugh and tell a special story that makes you feel how lucky you are and, how important it is that we still wake up every day and face this beautiful world that we live in. It is great having you join us.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hello tngrits

 

Welcome! I'm so very glad you've joined us. I too have CREST for the past 10 years. You've come to the right place for information, support, and good ole friendship. I'm really glad you joined us, and I look forward to knowing you better.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi tngrits

 

Welcome to the forum; I too have Limited Sclero and was diagnosed last July.

 

I look forward to reading your posts. :)


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello Tngrits

 

Welcome to the forum, you're in the right place for all things sclero!

 

I always find it encouraging when people have had scleroderma for a long time, I am into my 3rd year with diffuse. It's been an interesting journey that's for sure!

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Tngrits,

 

Congratulations on graduating from the Welcome Forum recently! I am just moving this thread into the Main Forum now.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Thanks Shelley. I am thoroughly enjoying my time here. Very nice people.

 

Linda

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