Sign in to follow this  
Followers 0
ozzy69

Calcinosis?

5 posts in this topic

Happy Holidays everyone!

 

I have been having problems with my right hand fingers ever since it has gotten cold again. My index finger and middle finger are a lot more swollen then my other fingers. I have about six bumps about the size of a pea on my index finger. it is sore & red.. Something when my Raynaud's is acting up the bumps show up white. Could this be Calcinosis? Does calcinosis only come with the crest? I was told by my doctor that she believes that I have diffused sclero. I have taken a couple pictures and I will post them. I do have a doctors appointment in Jan.

 

Ninathank-you.gif

Share this post


Link to post
Share on other sites

Yes, it's calcium deposits. I have them on my feet, arms, ears and now thumbs. I was just at the doctor about this today. Thing is that once the little rocks pop out, they fill up again. Just one of the perks of this disease.


Tru

 

It is what it is...........

Share this post


Link to post
Share on other sites

Hello Nina

 

According to the UK Scleroderma Society booklet Understanding & Managing Scleroderma about 42% of people with limited sclero develop calcinosis to 17% of people with diffuse.

 

We have a page on calcinosis that includes a picture. According to the information: Generally, there is no treatment required for calcinosis, although surgical excision is sometimes done for extensive or very painful calcinosis. Unfortunately it also says: no treatment has convincingly prevented or reduced calcinosis.

 

No doubt others with calcinosis will chime in with many handy hints and useful advice for dealing with calcinosis.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Thanks Truman & Amanda,

 

I have read about Calcinosis before but I was not sure if that what it was. Does the cold weather seem to bring them out more?

Hope everyone had a Happy Holidays & a Happy New Years!

 

Nina

Share this post


Link to post
Share on other sites

Hi Ozzy- I haven't found that it makes them worse (Ithink because they do progress slowly) but it certainly makes the ache more.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0