Sign in to follow this  
Followers 0
Margaret

G's colonoscopy

8 posts in this topic

Hi, Everyone ,

 

Gareth did really well with the prep yesterday for his colonoscopy this morning. The doctor found several rectal ulcers and did biopsies on them. It will take a week to get the pathology report back. I guess they have to rule out Crohn's or some other bowel disorder. I couldn't find anything in the Sclero medical reports about ulcers but I will keep you all posted when the pathology report comes back.

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Thanks Margaret on keeping us informed on Gareth. I am so happy he was able to survive the not eating portion of the test. That is always the hardest part for me. When I know ahead of time that I am going to have have certain tests then I plan them for very early in the morning. If I don't have that option because the test needs to be done right away then I usually stay up half the night eating my morning meals. Then I don't eat the required hours prior to testing, because I am sleeping until right before going in for the test. I don't think I could be up half the day waiting for a test and not eating or drinking something. It seems like I eat/drink something about once an hour. I guess that is in part from having diabetes on top of everything else. Do keep us informed on what the results showed. Hopefully, Gareth won't have to have any further testing done.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Margaret

 

Keep us posted....I always hated the 'drinking of the so called lemon and/or flavoured drinks' required for the test...yuk :barf: !! Hoping for good luck with his results.


Sending good wishes your way!

Share this post


Link to post
Share on other sites

Hi Margaret,

 

I'm so glad Gareth got through everything as well as he did.

 

Not long ago, I had a colonoscopy/upper endoscopy. It was time for them and was glad to get them done all at once.

I wasn't fussy about the prep, but I really like Sheryl's idea of sleeping up to just before the test!

I would never (again), have them done as late as I did...3:00PM! That was not even nice, wating that long!

 

Thank you so much for keeping us posted, Margaret!


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Margaret. Glad to hear things went well with Gareth's test.


I may have Scleroderma, but Scleroderma doesn't have me!

Share this post


Link to post
Share on other sites

Hi, Everyone ,

 

I got an interesting phone call from Gareth's gastro doctor the other night. He read the biopsy report, and then, stated that he felt the diagnosis was wrong. The tissue around the rectal ulcers didn't show Chrohn's, IBS, etc. It showed foamy histiocytes that were PAS positive - such findings are seen in Whipple's disease. WHAT is Whipple's disease?!?!? I spent the rest of the evening researching on line and tend to agree with him.....Gareth doesn't show the majority of the symptoms EXCEPT the neurological ones, which could be the autism or early AD, too, which his neurologist *thinks* he has. In hindsight though, he has gone downhill so badly, neurologically, since our trip to Puerto Rico in May. This kid is sooooooooooo confusing!!! I told the gastro doctor that no one expected the diagnosis of sine-Scleroderma/UCTD when he was 18 years old, either, and that he should keep an open mind!!! The only thing I can think of was (if it is Whipple's) that he got it in Puerto Rico this past May - maybe from snorkling. Who knows?!?!?

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Good grief, Margaret, Whipple's Disease? I had to look it up too. What's the next step? Is his doctor going to try treating Gareth with antibiotics?

 

Warm hugs to you both,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Margaret, I am so sorry to hear of more bad news for Gareth. Sometimes life just doesn't seem fair does it. I sure hope there is something that he can be given that will help with most of his symptoms. I feel so bad for you and your family. Please keep us informed on what can or is being done to help Gareth be more comfortable.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0