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      Upgraded Sclero Forums!   05/18/2017

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erika

It seems I will join you

6 posts in this topic

Dear all,

 

I have been reading your posts for some time since I suspect I have slero. I am 51 and for the last 10 years I had serious allergy problems with chronic gastritis, few angiooedema attacks, bronchospasms, food intolerance etc. which highly increased in the pollenation season (hasel, birch and ambrosia. Took a lot of medicines to endure (apart from systemic corticosteroids).

 

I was saved from most of the symptoms by one doctor who found that I have Candida and few other fungus (don't remember which) and that I have inflammation in my bowel. The cause of all this was intolerance to cows milk, wheat, yeast in bread and few fruits. He gave the diet, medicines and vitamins with instructions not to eat fried food. After a while I felt like new and was happy to enjoy healthy life.

 

Since two years ago I have had pain in joints which started suddenly with strong low back and neck pain. In addition to that I had swelling of my left elbow inner side which was hard inside, skin normal and it did not hurt. The tips of my fingers were red and sensitive. Neuralgia in my left ankle spreading to the whole leg. My butt hurts when I sit.

 

I went to rheumatologist who suspected rheumatoid arthritis (swollen finger joints), but a lot of examinations did not show anything but dry eyes. I went regularly to massages, sometimes to physical therapy and somehow I endured. Few months ago the swelling on my inside elbow started to hurt and to expand. Meanwhile I have bought Electrostimulator Globus 1200 with TENS unit and microcurrents and I treated my elbow and knees 10 times. The pain is much smaller. (Has anybody experience with such devices in this illness?) Now the tips of my fingers have become shiny and sensitive again (they are not swollen). Seems like skin thickening will start?

 

I have asked for appointment with my rheumatologist again and wait for the answer. But I doubt they will find anything until I get all thickskinned. Depressed and nervous, I study all features of this illness. I found this forum very useful since the disease is very rare and nobody I know has ever heard about it.

 

I greet you all and wish better health in the new year.

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Hello Erica

 

Welcome to the forum!

 

Having symptoms without a diagnosis to pin them on is difficult and I hope you get some answers next time you see your rheumatologist. I am unable to say whether you may/not have scleroderma because I am not medically trained but hope you find the support here that you need at this time.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Erika,

 

Welcome to the Forum.

 

Obviously we can't give you a diagnosis, but I hope we can give you support and friendship while you search for answers.

 

I have the shiny, reddened, painful fingertips, but they have neither devoloped into tight/thick skin, digital ulcers (what I am most afraid of), or even calcinosis. I think the advice most of us would give you is to protect your hands from cold, from very hot (like washing dishes in very hot water), keep them moisturized with creams, and try and protect them from injury.

 

I also use a TENS unit. It does not offer a cure of any sort, but can be very useful in relieving certain types of pain. We have a link to an article discussing the effectiveness of transcutaneous electrical nerve stimulation for treatment of hyperalgesia and pain that might be interesting for you to read.

 

I join with you in wishing us all better health in the new year and once again welcome you to the Forum.

 

Best Wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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I am glad that you have found this forum. When I first became sick I typed my symptoms into search engines and became very frightened with what I read. After reading this forum I discovered that as serious as this disease is, many manage their symptoms and are able to lead happy lives. I hope you get a diagnosis soon because not knowing is the scariest thing.

 

miocean


ISN Artist

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Dear Amanda, dear Jeannie, dear Mioceon,

 

Thank you for your welcome. I would rather not be here but I am glad that I have found you. I admire your strength. Thanks for the advices. I have a lot of questions and I hope to find some answers in reading the forum topics from its starting. Since now I have been preocupied with simpler aspects of the illness (joints pain, skin issues, loosing face)and I skip internal organs problems. Hoping that it stays that way, regards to you all.

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Hello Erika

 

As you can see you have graduated from the new member's forum to the undiagnosed forum...congratulations! :emoticons-yes:

 

Keep posting and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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