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Janelle

Digital Ulcers and Arterial Flow Pump

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I have been newly diagnosed with Scleroderma. I have two digital ulcers and they have begun debrieding them. I have another appointment tomorrow in hopes of no amputation. I am also using an arterial flow pump to get blood flow to the damaged blood vessels in my fingers. Has anyone else had any success with a pump?

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Janelle, welcome to Sclero Forums!

 

I'm in Minnesota, too. I've never had to use an arterial flow pump, and I don't recall that as being a subject around here, at least for quite a while. So it's a really excellent question and I'll also be eager to hear what others have to say.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Janelle

 

Welcome to the forum! I am sorry but as I don't have ulcers I can't be of any specific help but just wanted to say welcome. There are however plenty of people on the forum who also suffer with ulcers and no doubt they'll join in soon.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi!

 

Before I started taking Cialis, I got really terrible digital ulcers. I haven't heard about this pump but would like to know more.

 

Mary in Texas

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Hi Janelle,

 

Welcome to the Forum. I'm sorry you needed to find us, but am glad you did.

 

I'm no help on this subject either, but would be very interested in learning more about it. Could you tell us more about the pump?

 

I hope you will keep us posted. I know we're all wishing you the best with your digital ulcers and will hope that amputation never becomes necessary.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Thank you all for the good wishes. Unfortunately my appointment yesterday didn't go very well. The gangrene has gone to the bone and it sounds like they will amputate soon. I meet with a hand surgeon in two weeks. As far as the arterial flow pump goes it is interesting. The sclero has damaged the blood vessels in my fingers (thus the Raynauds) so I wrap these cuffs around my forearms snugly and turn the machine on - the cuffs inflate every 20 seconds to imitate blood flow. I am also on a couple of medications to open the blood vessels. They seem to think this will help heal the fingers after the surgery so it won't continue on down the rest of my finger. I will probably be on this for long term. Once again thank you for the wishes and just for listening.

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Janelle, I am so sorry the news from your appointment wasn't as good as you'd hoped. Thanks so much for taking the time to explain the pump at what must be a difficult time for you. Any time you feel the need to chat or vent, you've got a whole community of new friends more than willing to listen.

 

Best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Janelle

 

I just wanted to welcome you too...this is great place for factual information on this disease. Hope you ask all the questions you want, you'll always find that someone will have some answers. I am forever learning new things here which is very good.

 

I'm sorry to hear you are having such a terrible and scary time with your hands and that your appointment didn't go as well as you were hoping. Good luck with your surgery. When you can, I hope you keep us updated on how you are doing.


Sending good wishes your way!

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Hello again.

This is a really nice way to vent. I am fortunate to have a very good support group in my family and friends but they are scared and confused right along with me. I don't understand how this all happened so fast. Maybe in time I will understand. I am so scared of the amputation but know in time it will end the pain. What if it happens again? I think right now that is my biggest fear - I am petrified of any little cut or sore that it will turn into an ulcer.

Well again thanks for letting me ramble.

Janelle

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