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Shelley Ensz

Gene Ensz had Lung Transplant

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Hi Shelley

 

I'm thrilled for you both as well....here's wishing him a speedy recovery....you are both in my thoughts too!


Sending good wishes your way!

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:emoticons-yes: Shelley - Thank you for sharing and so happy to hear that Gene is doing well. Wishing him a speedy recovery. He has a good nurse.


Gigi08

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Hi miocean,

 

We do not know and did not ask the age of the donor, or anything else about the donor. The only concern we had was whether or not his surgeon found the organ acceptable enough to offer it to him.

 

He was offered a lung last August, but just when they were going to wheel him down to surgery, his surgeon rejected the donor lung. Gene was very happy about that as he already had two bad lungs, what did he need with yet another bad one?

 

So we were both entirely comfortable leaving the decision in the hands of the transplant team. What they want is the very best outcome. Our attitude is, with such a severe shortage of donor organs, getting ANY offer of an organ the transplant surgeon finds acceptable is good, rather than to end up on the way-too-popular "died waiting" list.

 

The real key here is whether you truly trust your transplant team. Do they have a good track record? If not, you should switch your transplant center. If they do have a good track record, they cherish it, and will be doing everything in their power to have your transplant be successful. Thus, they would not be offering you a truly "bad" kidney. At your next visit, you might want to talk to them about what the minimum is THEY would accept, if the kidney was going to THEM. My guess is, if they are offering you a kidney, it is probably because it will be in good enough shape to last you a lifetime (if you take the best possible care of it). But if they say they would personally turn down the expanded criteria ones, if it were them, then keep on doing what you're doing, of course!


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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It is so great to read that Gene is continuing to improve so well. I am so happy for you both, Shelley!

It is so wonderful that Gene is progressing as he is...(Jack Benny would well up with pride...Gene 66, going on 30 :jump-for-joy: )!

 

Keep On Keepin' On, You Two!!!

Thanks so much for sharing the good news!


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Shelley,

 

I apologize for my slow response regarding your husband. Congratulations on his successful transplant! :) Best wishes to you both for a long and happy life together! :)

 

Annie


Diffuse Systemic Sclerosis, (Scleroderma). Lung, skin and gastrointestinal involvement.

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Just the concept of a lung transplant is amazing, but then to see how just one lung can make such a huge difference is miraculous! I join the others in saying how thrilled I am for the both of you.

 

Lots and lots of hugs to you both.


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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