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Sasha

New symptom?

9 posts in this topic

Hi,

 

I have not posted here in a long time, but would love to know if anyone else is experiencing a new symptom that I have developed. I have CREST (REand T) but have had a stabilization of my symptoms for a good couple of years. About 3 weeks ago, my lips became very dry and chapped. I thought it was a reaction to a new lipstick, so I quit using it. HOWEVER, I can not get my lips back to their normal condition. I have been using all the usual lip balms (up to 3 to 4 times a day)and now it looks like I have little sores around the edges of my lips (but it is hard to tell if that is due to the dryness or something else). I also have developed tiny (about the size of a pimple, but not pimples)open sores on my chest. Does this sound familiar to anyone else? Any ideas on how to get my lips back to normal?

 

Thanks!

Sasha

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Hello Sasha

 

Welcome to the forum!

 

I have not had the problem you are experiencing and can only refer you to our page on dental involvement which obviously includes the mouth.

 

I would suggest you see your doctor to really know what's going on and to hopefully start getting some relief!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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This might sound off the wall, but have you changed your toothpaste or mouthwash recently? Another thought is that you've perhaps developed an allergy - at the ripe old age of 50+, I developed an intolerance to fluoride toothpastes. I changed to one without fluoride and the irritation around my mouth cleared up. I also have to be a bit careful about getting foundation makeup too close to my lips, so maybe your makeup could be at fault.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Thanks for your replies.

 

I am thinking I am allergic to the dyes in lipstick and that is what first caused the problem......I have not used lipstick since it happened, and just wish I could get them to clear up. I read a bunch of stuff on the internet about treating severely chapped lips and am now trying a neosporin lip ointment. So we will see.

 

-Sasha

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Hi Sasha,

 

Welcome back. Hmmm I can't say I have any experience with what you are going through righ now. Do you still have the sores on your chest? If so, I think it would warrant a trip to the doctor. I'll be interested in hearing what he/she says.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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I'm thinking a trip to the doctor might be in order too especially if you have them on your chest as well can't just be from toothpaste if that's the case humnnn plot thickens. Let us know if they are disappearing with the antibiotic ointment.


Sending good wishes your way!

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Hi Sasha, I started suffering terribly a few years ago now with chapped lips. It was dreadful, and I think I spent a full 4-5months with really sore lips.

 

The only lipsalve I found that has worked for me starts with an (N) and is a Lip Care Repair - the Repair & Protection one, which is found in the light green-ish cover. For me, this stuff is a godsend, and I have a stick in every hand-bag I own, so I never go out without one ! It costs a little more than most of the others, but for me, it's worth every penny.

 

I know it may be something other than chapped lips, but it could be worth a go ?

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Hi Sasha.

The response that you received that said check your toothpaste is right on the mark. I had the exact same issue with my lips a few years ago (didn't know that I had sclero at the time). Anyway, after months of no improvement after chapsticks, new lipsticks, vitamin E, etc. someone advised me to change toothpaste. My lips cleared up in one week. I also used to get alot of canker sores & since switching I get them so infrequently. Good luck. Hope it works for you,

Lucy

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