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Vanessa

Dried out throat

31 posts in this topic

Hi Rudigee,

 

Welcome to these forums!

 

How very unpleasant the dry mouth symptoms are for you; I do hope you will be able to have your operation soon to sort this out.

 

Please do let us know how you get on.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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My mouth is also very dry; I always have something to sip on beside me. If going anywhere I take water or pop with me.

 

When my lungs get dry I have a funny raspy feeling in my chest. My doctor xrayed my chest and checked for infection; she found nothing and said I have dry lungs. I use a humidifier at night especially and I also use a spray in my mouth that is safe to swallow. Mints help a lot and encourage saliva production.

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I love to do steam facials. I take just an inch of purified water to boil. I hold a towel over my head and then hold it at a safe distance above the pan.  It does a home run treatment for dryness, moistening the eyes, skin, nose, mouth and even lungs. It opens up facial pores so serves as a pampering facial at the same time! 

 

Warning, I don't think I'd try this with a gas stove.  But I've even used my rice cooker for this. And if I'm boiling anything and have the time to spare, I press it into double duty. Just always keep your eyes closed around any steam, of course, and keep a safe distance. Sometimes I even add things like mint leaves, especially when I have a cold. And this is great for sore throats and laryngitis.

 

A similar thing is to take a shower, instead of a bath, when feeling particularly all dried out. Lathering up skin and hair with coconut oil before the shower turns it into an all over moisturizing treatment. But word to the wise, use a bath mat and do NOT oil the bottom of your feet. Some of us, and I'm not trying to point any fingers at me, no never, do not always think these things through in time. :emoticon-dont-know:

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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I have had blood tests done by my rheumatologist to test for Sjögren's syndrome, which were negative. But I've got every symptom of it that just keep getting worse. Is it possible that I do have it and it didn't show up on test?

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Hi Angelily,

 

Welcome to Sclero Forums!  I'm sorry you have symptoms like that of Sjogren's syndrome, and that you need answers in that regard.

 

As it happens, not everyone with Sjogren's expresses positive or definitive antibodies. Other tests that can be done in an effort to diagnose it include Schirmer's test, which is just a strip of paper put in the eye for a few minutes to stimulate tear production; sialogram (an x-ray of the parotid gland, with dye injected); and a lip biopsy. 

 

I've had all those tests (I have Sjogren's.)  Given my experience, I'd recommend the Schirmer's first (very fast and easy and painless, typically done by an opthalmologist); then the lip biopsy (a simple in-office procedure and not as awful as it sounds (it is on the inside of the mouth, not on the outside of the lips); and then the sialogram, which is my least favorite of those tests.
Many people don't find the additional testing worth it, as their symptoms might be fairly mild (considering) and treatment is often the same, with or without diagnosis (such as, eye drops for dry eyes, etc.)

 

It's possible, of course, to have dryness problems caused by other things -- especially medication side effects -- without having the underlying disease. Please keep in touch and let us know how things develop for you.

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Angelily,

Welcome to these forums!

I'm sorry to hear that you're experiencing symptoms resembling Sjogren's, which can be very unpleasant.

As Shelley has said, it is possible to have Sjogren's and yet still have negative blood tests, as they are by no means conclusive, so it sounds as if you need to go back to your rheumatologist to have further tests such as Shelley has suggested.

Please let us know how you get on and whether things improve and you are able to get some relief from the symptoms.

:hug-group:

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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