Vanessa

Dried out throat

31 posts in this topic

Craig, I agree with your remark, it is time to shop around for a different doctor.

 

I have been thinking about doing this for some time, but keep on putting

it off, due to digestive problems. Once things are a little better for me,

i will look into this further.

 

Kind regards

Summer

Share this post


Link to post
Share on other sites

Summer, I agree with Craig: Get a new doctor! I have not been diagnosed with Sjogrens, but I think I probably have it. My mouth is often dry, but I just chalked that up to the fact that I never seem to drink enough water.

 

What I began to notice was dry eyes and a painful stabbing in the left one. The stabbing scared me and I called my opthalmologist. He checked it out and said both eyes were very dry but the left one was VERY, VERY dry! I asked him if it had damaged my eyes. He said that it could and told me to get a certain over-the-counter eye drops and use them four times a day PLUS a heavier (than the drops)eye ointment to put in each night, and he told me to come back in a month so he could check on it. He seemed to take it quite seriously. I did ask if it could be Sjogrens and he said that it might be but that, his treatment would be the same for the eyes in any case.

 

I did return in a month and he said the eyes looked much better and I already knew they felt much better.

 

Only recently have I started waking up with a mouth so dry my tongue is stuck to the roof of my mouth. I figured it could be Sjogrens or the fact that my nose was a little bit stuffy and I thought I had probably been breathing through my mouth.

 

What symptoms would someone notice if his lungs were being affected? I have been very short of breath lately. I also am anemic, though, and I realize that, too, could cause shortness of breath.

 

Thanks everyone,

 

Mary in Texas

Share this post


Link to post
Share on other sites

I have always had dry throat because of my nose bone deviation and allergies and had always to breathe with mouth open. The dryness has increased with this illness and I find nose patches, which open the nose congestion and that you stick on your nose before sleep, very helpful.

Share this post


Link to post
Share on other sites

Summer get a new doctor please! A rheumatologist who knows what they're doing will be a great help to you and maybe they'll have some ideas about your stomach issues.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

My mouth is always dry. Thought it was because I am on fluid restriction due to dialysis. Last winter I developed a dry cough which was diagnosed as pertusis or whooping cough. I took some meds and it got a little better but now that the cold weather is here again I am very dry and coughing. It's like there's a part of my throat that is dry and I just can't get to it, hence the cough. I put a humidifier in the bedroom thinking it might help but my cough has become so bad at night that my husband moves to the couch. I feel badly but can't stop the coughing. Another new development is that I am constantly clearing my throat. That is annoying too, for both my husband and me. Does anyone else do that?

 

miocean


ISN Artist

Share this post


Link to post
Share on other sites

Hi all,

 

I'm currently on antibiotics (which I hate to have to take) for my second chest infection in the last 3 months. I hadn't realised (neither had my general doctor it seems) that it could be due to my constantly dry mouth.

 

I have drops and gel for my eyes, but hadn't asked for mouth spray and hadn't realised that this could be why I have so many chest problems and dental issues due to my bone-dry mouth. I can hardly talk some times it gets so bad.

 

This illness seems to have its claws on so many parts of our bodies, its not fair.

Share this post


Link to post
Share on other sites

Just got in from the ENT.  I've been suffering this dry throat and gasping for air at night, or even when trying to sleep on an airplane.  I've been on acetylcysteine for a couple of weeks now, thinning out my secretions, which has helped.  However, the ENT says I have a deviated septum that needs surgery.  The septum, of course, would cause me to breathe through my mouth, drying it out and causing the sticky feeling that leaves me gasping for air.  ALSO, I have a low soft tongue!! What does that mean?  When relaxed, laying on back, and even on your side, the tongue pushes up against your pallet.  Since my soft pallet or soft tongue, as the ENT called it, is touching my tongue, there is no way for the air to travel to your lungs.  Add in the deviated septum issue, and he is sure this will correct my problem.  Now waiting to get the septum fixed first, which where I am, can take months.  Also, advised to clean with a sinus rinse 2x day with body temperature, clean water.  Going back in a month.  Fingers crossed.

Share this post


Link to post
Share on other sites

Hi Rudigee,

 

Welcome to Sclero Forums!  Thanks for replying to Deb, too, and explaining other possible causes for dry mouth.

 

I hope you get everything fixed so that your dry throat gets under control. Please keep in touch and let us know how everything goes for you.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Hello Debbie

 

Nothing is off limits to scleroderma! It amazes me how much damage it can cause, whether slowly or quickly, inside or out, it beavers away, ever busy.

 

I didn't know about chest infections but I guess it makes sense, nothing to lubricate and protect maybe? Look at the damage loss of moisture can do to the mouth! Since suffering with dry mouth it took just 6 months between visits to almost lose a tooth (the jury is still out) whereas previously I went 10 years between visits and had NO fillings as a result.

 

You have my sympathy and in raising this, someone else might realise what's happening to them. Thank you for sharing this and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Rudigee

 

Welcome to the forums!

 

It's seems a small matter, dry mouth but what a palaver it causes! I hate waking up with my tongue stuck to the roof of my mouth and my eyes stuck to my eyelids. Upon waking it takes me awhile to be able to swallow, speak and see properly and there is of course the long term damage.

 

I hope you have your operation soon and that it's a success for you.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Rudigee,

 

Welcome to these forums!

 

How very unpleasant the dry mouth symptoms are for you; I do hope you will be able to have your operation soon to sort this out.

 

Please do let us know how you get on.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

My mouth is also very dry; I always have something to sip on beside me. If going anywhere I take water or pop with me.

 

When my lungs get dry I have a funny raspy feeling in my chest. My doctor xrayed my chest and checked for infection; she found nothing and said I have dry lungs. I use a humidifier at night especially and I also use a spray in my mouth that is safe to swallow. Mints help a lot and encourage saliva production.

Share this post


Link to post
Share on other sites

I love to do steam facials. I take just an inch of purified water to boil. I hold a towel over my head and then hold it at a safe distance above the pan.  It does a home run treatment for dryness, moistening the eyes, skin, nose, mouth and even lungs. It opens up facial pores so serves as a pampering facial at the same time! 

 

Warning, I don't think I'd try this with a gas stove.  But I've even used my rice cooker for this. And if I'm boiling anything and have the time to spare, I press it into double duty. Just always keep your eyes closed around any steam, of course, and keep a safe distance. Sometimes I even add things like mint leaves, especially when I have a cold. And this is great for sore throats and laryngitis.

 

A similar thing is to take a shower, instead of a bath, when feeling particularly all dried out. Lathering up skin and hair with coconut oil before the shower turns it into an all over moisturizing treatment. But word to the wise, use a bath mat and do NOT oil the bottom of your feet. Some of us, and I'm not trying to point any fingers at me, no never, do not always think these things through in time. :emoticon-dont-know:

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

I have had blood tests done by my rheumatologist to test for Sjögren's syndrome, which were negative. But I've got every symptom of it that just keep getting worse. Is it possible that I do have it and it didn't show up on test?

Share this post


Link to post
Share on other sites

Hi Angelily,

 

Welcome to Sclero Forums!  I'm sorry you have symptoms like that of Sjogren's syndrome, and that you need answers in that regard.

 

As it happens, not everyone with Sjogren's expresses positive or definitive antibodies. Other tests that can be done in an effort to diagnose it include Schirmer's test, which is just a strip of paper put in the eye for a few minutes to stimulate tear production; sialogram (an x-ray of the parotid gland, with dye injected); and a lip biopsy. 

 

I've had all those tests (I have Sjogren's.)  Given my experience, I'd recommend the Schirmer's first (very fast and easy and painless, typically done by an opthalmologist); then the lip biopsy (a simple in-office procedure and not as awful as it sounds (it is on the inside of the mouth, not on the outside of the lips); and then the sialogram, which is my least favorite of those tests.
Many people don't find the additional testing worth it, as their symptoms might be fairly mild (considering) and treatment is often the same, with or without diagnosis (such as, eye drops for dry eyes, etc.)

 

It's possible, of course, to have dryness problems caused by other things -- especially medication side effects -- without having the underlying disease. Please keep in touch and let us know how things develop for you.

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now