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Sharonvandee

TIA (mini stroke) anyone else have these, what was your treatment plan?

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Hey Everyone

 

I hope everyone is well and enjoyed the holidays with loved ones. I hope the New Year is off to a good start.

 

I spent New Year and the following four weeks in hospital due to various issues.

 

I was initially in due to severe dehydration and malnutrition. I believe this is due to my inability to eat and keep down anything much more than liquids. After a lot of testing they finally came to the conclusion that my issues are due to severe gastroparesis, little motility of the esophagus, lack of saliva due to Sjogren's, all stuff which I had already told them. So I was sent home with Cisapride and the talk of trailing a nasogastric tube before putting in a PEJ feeding tube. I am so not looking forward to this but know now after the last few days it is inevitable.

 

I went home only to return in under a week having TIA or Transient Ischemic Attack also know as mini stroke. This was extremely scary for us all and certainly a warning to sort out these health issues. After a lot of tests and talking, we realised I had been having them every few weeks but never so severe and noticable. I am now permanently on Asasantin SR for life to lessen the chances of it happening again, or next time having one with more long term damage being done.

 

I am hoping to get to the city and see Sclero specialist who will better know the best course of action and I am hoping that that will happen sooner rather then later. It certainly made me realise how much more precious life is.

 

Has anyone else had TIA?What treatment did you get?

 

 

Shaz


Kindest Regards

 

Sharon

 

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

 

a little bent and broken and almost beyond repair!

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Hi Shaz,

 

What a terrible time you have been having, Honey. It's definitely not the way to start out the New Year~ I am so sorry and hope the specialists can work together to keep things from getting any worse.

 

I haven't had this problem, but it is apparently not unknown. We have a section on stroke under the general heading of Cardiac Involvement: Stroke and Mini-Stroke and there are some related articles in Scleroderma Brain Involvement.

 

Please let us know as often as you feel up to it how you are getting on.

 

Best wishes and warmest hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hello Shaz

 

I am so sorry you are having a difficult time, I admire your resilience. You have certainly had more than your fair share of health issues with out mini stroke. I hope you are able to make the best decision for you regarding the feeding tube.

 

Please let us know how things go and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Sharon,

 

I'm sorry you need a feeding tube and have had transient ischemic attacks (TIAs). You'll probably hear from several forum members who have had their health improve after going on a feeding tube, since it eases the whole process of eating and helps you get adequate nutrition.

 

I had a TIA and thought I'd never forget the date/year, but thankfully I have. Perhaps four plus years ago now? Oh, easily. Anyway, treatment is different for everyone depending on whether your blood is too thin or too thick or stabilized at present. I was on plain baby aspirin for a few years; at the moment I'm not taking anything for it and everything seems fine in that particular regard (knock on wood). Asasantin is like baby aspirin with another factor to help clotting.

 

I'm sorry you have had TIA's, hopefully now it will be kept under control. It will be great for you to get in to see a scleroderma expert!

 

I sure know what you mean about how it makes you realize how precious life is! Things like that make me focus all the more on truly eeking all the enjoyment out of life that is possible, and thus, oddly enough, such events somehow often manage to improve our quality of life due to a sudden rearrangement of priorities.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Sharon,

 

Wow, I am sorry you are having to deal wih all of this!

 

Last May I was having some symotoms that the ER doctors thought might be TIA's so I was shipped off to the big city hosopital and had my head examined. Turned out that there IS a brain in there! (yea a lame joke but I had to take advantage...)

 

All tests came back okay so I never did find out what was causing those symptoms. But I can guess that it was most likely a combination of stress, sleep deprivation, low blood pressure, low blood sugar and dehydration. It's scary when you know your brain isn't functioning like its supposed to! I still have difficulties with recall, short term memory loss, and concentration.

 

I hope you are feeling better now and wish you success and relief with the PEJ. Enjoy all those precious things in life!


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Thanks you all for your thoughts.

 

Yay off to Melbourne in three weeks to see one of the best specialists we have here in Australia. He has promised he will get thing sorted quickly, so fingers crossed.

 

Shaz


Kindest Regards

 

Sharon

 

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

 

a little bent and broken and almost beyond repair!

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Shaz, I'll cross everything I have that can be crossed (even my bra straps and I don't offer to do that for just anybody)! It's great you'll be seeing him so soon. I'll keep my out for your posts.

 

Best wishes and warmest hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Sharon, I hope your new specialist sorts things out for you as soon as possible, and that you are feeling better (and less worried) very soon! I can't imagine having TIAs on top of everything else related to Sclero (and I know my poor husband would be a basket case!). From one Sharon to another - hang in there! By the way we were in Australia a couple of years ago for our 40th Anniversary, and absolutely fell in love with your country.


Sharon T.

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