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nata1979

Morphea Scleroderma lasts 3-5 years?

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Hi everyone!

 

It says in sclero articles that the active period of the disease lasts 3-5 years. Guys Is it true? Could this be cured by itself?

 

Here's my short story. 30 year old female, Positive ANA and SCL70 and almost no symptoms...but I noticed a little plaque on my chin that is soft, brownish and a little bit bound-down. I think it could be localized morphea (Subcutaneous morphea). What else it could be? (I went to sclero specialist and she said I don't have anything but this was a couple of months ago. Could this plaque appear in 2 months?

 

Are there anybody who had positive ANA and Scl70 and it amazingly disappeared then or its just a nice story to believe from my rheumatologist?

 

Thank you guys.

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I definitely know where you are coming from......I too,am scl70 positive and have had symptoms that FOUR count them FOUR rheumatologists and the last being a sclero specialist, say aren't related to active sclero. There is NO cure for it. A lot of the information out there states the first 3-5 years can show the most active internal symptoms but that literature can vary. Your best bet is to find a sclero specialist. They can help you navigate thru all the mess that comes with this.

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Hi Nata,

 

It seems that many people will see an improvement after the 3-5 year period, but not all will. There is no cure for the disease, though. Have you been diagnosed with scleroderma simply on the basis of a positive ANA and SCL-70 and no clinical symptoms? If I am understanding you correctly, it sounds as if your scleroderma expert has said that you don't have scleroderma, which would be good news, indeed.

 

As for the brown spot on your chin, this could actually be due to many things other than scleroderma/morphea. I think if it were me, I'd have a dermatologist look at it.

 

Best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hello Nata

 

Once a slcerodermian always a sclerodermian, the disease never goes away. It has an active period of 3 to 5 years and then it can plateau, then it's a case of wait and see if other symptoms develop over time which no one can predict.

 

I'm with Jeannie see a dermatologist.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Nata,

 

I think we're all a tiny bit confused in this thread, in that you are referring to Morphea Scleroderma, and not systemic scleroderma. They say most cases of mild morphea may settle down and possibly even clear up a bit, within 3 to 5 years, even without any treatment. But worse cases do require treatment to help prevent the spread of it.

 

Please see a board-certified dermatologist for the spot on your chin, as it could be many different things (including morphea). ANA and Scl-70 can both be positive without ever developing any associated disease, so in the absence of symptoms they are not important (and not diagnostic). It would be a "good thing" if what they were indicating was actually localized (rather than systemic) scleroderma, I suppose. Although preferably, I'm sure you'd rather not have any form of it at all!


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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