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lizzie

Echo results

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I went for my routine heart echo and lung function tests last week. I never usually get to find out the results until I next see the rheumatologist, so was very suprised when I received a letter today from the rheumatology dept. The good news is that as I anticipated my lung function tests are fine and my echo shows no major abnormality. However, The letter then went on to say that it had been commented that my liver was slightly enlarged and that therefore they had arranged for me to have a liver scan. Of course have been looking up causes of enlarged liver on the internet and quite honestly don't fancy having any of the things that can cause it, some are downright scary!. Has anybody else had an enlarged liver show up on an echo?

 

Lizzie

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Hi Lizzie

 

Sorry, I have no idea but I hope whatever it is gets resolved for you quickly with a magic cure of course. Sounds like it pretty much sneaked up on you in the tests? I reading this to mean that you weren't feeling any different than normal if you didn't notice it first? When do you go for your scan? Keep us posted and as always, I wish you good luck with the test.


Sending good wishes your way!

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Hello Lizzie

 

My liver popped up on my last echo, my husband asked the technician if she could see the word Chardonnay tattooed on it! Funny man.

 

It's a good thing it has been picked up so that it can be investigated and, if necessary, treated straight away. Try not to worry about what you've read on the internet, remember that according to some information on the internet scleroderma is a one way ticket outta here and as we know it isn't always.

 

Take care and keep us informed.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Please let us know the results.

It's scary when stuff like this pops up. Worry or not worry...........

I hope you get good news at your visit. Is it soon?

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Hello Lizzie,

A shame that you have an enlarged liver, but isn't it encouraging when they actually write to you and say what is going on. I hate being treated like a neurotic dummy who must not be told anything in case I get the wrong message.

 

I have what they call chronically deranged liver function - I love that word deranged!!

 

I am writing to pass on a warning which was given to my by my hospital rheumatologist and that is to NEVER allow anybody to do a liver biopsy, it is too dangerous. I know a family whose mother did not survive a liver biopsy and she was previously averagely healthy lady in her 60's.

 

I hope they find a reason without causing you too much distress.

 

Take Care

 

Warm hugs

 

Judy T

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Hi Lizzie

Sorry to hear this latest news from your scan, since your not feeling any symptoms hopefully things will sort itself out. Do let me know how you things go.

 

Best Wishes

 

Buttons

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Hi Lizzie,

 

Aren't you just having all kinds of fun? When's the scan? Hopefully it will be something totally innocuous and everything will be fine, bar the extra gray hairs the scare has caused.

 

Warm hugs and best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Lizzie

 

Sorry to read that your echo & PFT's showed up a possible problem with your liver.

 

I do hope that it's not serious & everything settles down again when you have your scan.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Lizzie,

 

Some of the sites about enlarged livers are scary, aren't they? I sure do empathize with you and hope they determine the cause for you soon.

 

As it happens, I've had what is sometimes reported out as an enlarged liver, for many years now. One doctor told me it was probably due to weight gain (fatty liver), and that my liver is in the "wrong spot", but with the interesting observation that many people's organs are not exactly where they are supposed to be. Other doctors (or scans) don't mention anything about it being any different than normal. So I have always assumed it is normal as I have no other liver problems or symptoms and only fleeting elevations on liver blood tests (SGOT, etc.).

 

While waiting for more information on this, you may want to comfort yourself with the idea that even your liver can gain weight or become weighed down with cholesterol, and if or until they prove otherwise, there's not enough evidence to get a really good worry going on. Interesting, yes. Curious, definitely. We're all hoping it turns out to be comparatively good news, in the end, and that you don't have to put the brakes on either eating or drinking. :blush:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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