Sign in to follow this  
Followers 0
Snowbird

Telangiectasia

14 posts in this topic

Hi everyone

 

Just wondering how the Telangiectasia are affecting people? I understood from my doctor that they do not come and go...they stay. I'm certain way back when somebody on the site here thought they could come and go but of course I can't remember who thought that so I'm just going to ask everybody their thoughts. I am wondering if I'm just forgetting and that might have been something other than Telangiectasia? I'm curious because I get red spots sometimes that look like pimples but are not pimples and do not act like pimples. Whatever they are, they come and go?

 

Anybody have any thoughts on this topic? Thanks.


Sending good wishes your way!

Share this post


Link to post
Share on other sites

Hi Snowbird,

 

As far as I know, the telangiectasias stay. I think once you've got one, it's there for good. We do have a page on them here. I'm steadily getting new ones. I just tell myself they contribute to the windblown outdoorsy look. wink.gif


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Hi Snowbird, I do not know if I am right or not but I believe they stay, that they do not come and go. I have had this area on my face for a few years,and did not know what it was, until I finally got the diagnosis of crest, scleroderma just recently.Then all of a sudden it all made sense. I hope that helps.

 

Have a great day,

Perfect

Share this post


Link to post
Share on other sites

Hi Jeannie

 

Thanks for the link...I again learned something new...didn't know about the possible clinical indicator either! Curious to know what it is that I get that comes and goes sometimes...of course, they are never there when I actually go in for a doctors appointment LOL.


Sending good wishes your way!

Share this post


Link to post
Share on other sites

Hi,

 

They stay. Most of the time they are flat, not raised like pimples. I did have a friend that had laser treatments that helped. My rheumatologist suggested it to me, but I haven't gone that route, I just use make-up. :girly1-by-lisa-volz:


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Snowbird,

 

I have telangiectasias all over. The ones on my mouth and hands give me the most trouble. I have had to have the laser procedure on my mouth several times (ouch) because they bleed. The laser stops the bleeding but then more arrive and the pattern repeats. I was having nose bleeds this winter and I thought it was from the dry air -- until I had a rheumatologist visit and he said I had new ones in my nose and that they were causing the bleeding. I will NOT have laser in my nose. That I refuse to do! You would have to put me out!! For some people they are no trouble at all. Sometimes I just look at them at play "connect the dots" and have a good chuckle!!

 

Ann

Share this post


Link to post
Share on other sites

Thanks everybody. I have no doubt whatever I get every now and then is not Telangiectasia because they don't stay (they just visit for a few days and then go away?).

 

Ann, ouch is right...don't blame you because I don't think I would want to have laser in my nose either. I didn't realize they could bleed too. Sure hope they quit giving you grief.


Sending good wishes your way!

Share this post


Link to post
Share on other sites

I'm so sorry Sweet! I had no idea this could jinx us on top of it all!! :o


Sending good wishes your way!

Share this post


Link to post
Share on other sites

Hi, I have them on my face but also on the tops of my feet. Anyone else have them there? My Dr. told me the ones on my feet were from raynauds?

 

Hugs, Piper

Share this post


Link to post
Share on other sites

I joined to learn and this is the first thing I learned. I have red spots on my face and shoulders that appear and never go away. Since they do not bother me, except when people look at me funny, I have not asked the doctor about them. I will have to look up "Telangiectasias" and see if they are what I have. Thanks

 

Snowbird I hope you find out what your red spots are.


Your Friend

Pawndy

Share this post


Link to post
Share on other sites

What I have is tiny spider vains on my cheeks and nose - is this related?

Share this post


Link to post
Share on other sites

Hello Kaykay

 

It appears so!

 

Sometimes you can clearly see that these are little spider veins; in other cases the spider veins are "bunched up" and appear to be a rash or blemish at first glance. However, if you pull the skin apart there, you will see that it is actually a spider vein, or a dilated blood vessel, and so it is actually a Telangiectasia (rather than a rash or pimple.)

 

Have a read of the information we have about telangiectasia for more information.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi before I was diagnosed with scleroderma, I think it was the year before I had severe nose bleeds that put me in hospital, my blood pressure was very high. I am thinking that maybe it was Telangiectasia after reading what every one has been saying. I had my nose cauterized at the hospital a few times ,then when it started again, but not so bad, at the doctor's. I was not put out so to speak and it really is not painful - it just seals the area where the bleed is coming from. I am not sure that this is the same as laser. If you r suffering from nose bleeds ask about it being cauterized.

 

lots of love LYNN

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0