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barefut

Menopause and Scleroderma

8 posts in this topic

I have not found a lot of information on Scleroderma and menopause 'out there'. Here are some questions I am looking for answers to:

 

Does menopause exacerbate sclero symptoms?

 

Does scleroderma (systemic) affect menopause symptoms making them more intense, last longer, start earlier....?

 

How does hormone therapy affect sclerodermians considering the disease itself as well as interaction with medications used to treat scleroderma and its related diseases (Raynaud's etc,.)?

 

How can you sort out the symptoms of scleroderma vs. menopause vs. medication side effects and does one even need to?

 

Has there been any research/studies on the effects of menopause on scleroderma vice versa? If not, why not?

 

Why can't sclerodermians just be excused/exempt from the symptoms of menopause? Don't we have enough on our plates? :huh:


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hi,

 

I'm new here but have been reading posts on this site for awhile. Just had to respond to your post because I've been wondering about this issue of menopause and sclero myself. Like you, I tried to research it on the internet and didn't find much. I was recently diagnosed with sclero (but not completely happy with my doctor, he hasn't done many tests that I read about others having and basically just says to come back in 6 months.) I had a hysterectomy 8 years ago, immediately went on HRT and had noticed my body changing and symptoms shortly after that. I am particularly concerned if my HRT is having a good and/or bad effect on this disease. I take Estratest (HS) and it does work for me, I have tried going off several times and feel awful so I end up going back on. My doctor doesn't think there's any connection, but like I said, he doesn't seem to have much background with sclero.

 

This is a great website, by the way. :)

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Hi Sassi,

 

Welcome! Glad to see you post. How long ago were you diagnosed? It doesn't sound like your doctor is a scleroderma specialist. There is a place on the medical main page here you can go to find a specialist in your area.

 

I'm sure we will get some feedback from those who have and are going through "the big change". Stay tuned.


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hi Barefut

 

I went through the menopause about 2 years ago and I was very lucky that in my case it was a total non event! I realise now with hindsight that all the symptoms I had were due to Scleroderma and not as I had originally thought due to the menopause but I think it is quite difficult to tell which is which having not experienced either before!! :blink:

 

I do hope that it's not affecting you too much & that you go through 'the change' as painlessly as I did!! ;)


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Barefut, Like Joelf, my menopause was a couple of years ago. In contrast to the experience of many non-sclero friends, other than for the welcome absence of periods, I would not have known it was happening.

 

Lizzie

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Thank you for the welcome :VeryHappy: I was diagnosed last August and what brought it to light was Raynaud's disease. The doctor (GP) started putting everything together, my digestive issues (reflux, pain), so he did a blood workup and told me they are leaning towards scleroderma. He ruled out Lupus and RA. He referred me to my present rhuematologist, who I don't have very good communication with so I am searching for a new rheumatologist, thanks for the info!

 

The only issue I have right now is knowing whether it's okay to be on hormone replacement therapy (HRT) with sclero. My doctor seems to think if it's working for me to stay with it.

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Hello Sassi

 

Welcome to the forum! If you're looking for a new rheumatologist you may want to have a look at our list of scleroderma specialists. It's important to have a good rapport with your rheumatologist.

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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