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Transitional care for young people with connective tissue diseases

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Transitional care for young people with connective tissue diseases. Within rheumatology, much of the literature in transitional care has addressed young people with juvenile idiopathic arthritis with less attention being directed to another significant group, namely those with connective tissue diseases. These young people, although fewer in number, often present complex challenges during adolescence and the period of transition from paediatric to adult-centred services. JE McDonagh MD FRCP. Paediatrics and Child Health. February 2010. (Also see: Arthritis)

 

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Hi David ,

 

Boy, we had to go through this with Gareth. He was only 18 years old when diagnosed with the sineSclero/UCTD, and now, at age 21, we had to find GOOD doctors that would take him due to his history. Fortunately, his Pediatric rheumatologist is hanging on to him and has been able to guide us to other doctors.....primary care physician, Cardiologist, Pulmonologist, eye doctor, etc. To be honest, though, I get the feeling from some of them that they have taken him on as a 'challenging' patient. Someone who may add some excitement to their routine day!!!

 

Take care, Everyone.

Margaret

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