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wcc3.75 hb 11.43 plt 14

21 posts in this topic

Hi Lynne,

 

I'm so sorry to hear about all your problems and hope that the doctors sort it out soon. You are really going through it but we are always here and thinking about you. I hope this helps you to know that you will always have some one to talk to.

 

Take care, love, Lynn

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Hi Lynne

 

Sorry things are still so difficult.

I have been having weekly blood tests and experiencing difficulties due to skin thickening (3 stabs yesterday) but then the nurse used a smaller needle which was much better.

Maybe worth aking about.

 

Best wishes

 

Vanessa

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hi Lynne

sorry to hear about your newly diagnosed problems, but glad you are now getting the best care. I hope the tests arent too stressfull. Please keep us updated as to how you are getting on? And I'll be thinking of you!

 

 

Hi Vanessa as well!

(sorry, Ive not logged on for ages)

I sympathise that youre having more skin issues. Sending you warm hugs.

I always have to have blood taken using the baby blue cannula, as they can never get any blood, or set up infusions etc. As you say, its worth asking

 

take care everyone

Debs

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Hi Lynne, Hoep you get your problems sorted soon. Re problems with taking blood-although I do have skin thickening , the bigger problem for me is that my veins don't want to be found! We often have to resort to me sitting with my hands in warm water for 10 minutes, and they have also use glycerin trinitrate spray on my skin to make the blood vessels dilate.

Lizzie

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At last, things are about to happen!

 

Had platelets today, as they were down to 11!, normal 150-400. My platelets are now being matched, as I developed a reaction to unmatched, so I have to be prmedicated with steroids and peiton. I find it hard to keep awake, when I get this :-)

 

Tomorrow, I have a lung function test, on Thursday, see the Prof at Royal Free, more platelets on Friday as well as blood transfusion.

 

On Monday, start on cyclosporin will have to stay away from infection, as I have to be as well as can be expected. If all goes well, with cyclosporin, I will start ATG, in 3 months time.

 

Thank you all, for your good wishes.


Take care.

Lynne

 

A trouble shared is halved, a joy shared is doubled

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Hello Lynne

 

I am glad that you have treatment on its way and that you're back at the Royal Free soon. It's been a bit of a roller coaster ride for you for sure!

 

I hope the cyclosporin works and you can get back ona more even keel!

 

Keep posting and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

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(Retired) ISN Sclero Forums Assistant Manager

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International Scleroderma Network (ISN)

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