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miocean

Kidney Transplant

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Just wanted to update you. I had my first set of labs drawn yesterday. I warned the tech that I was a hard stick. It took her two tries, finally used one of those little butterfly needles which work better on me. I have to go two times a week so I guess I'll get used to it. Fortunately, needles don't bother me that much, it's just that I've become really spoiled as for the last 5 1/2 years they have used my catheter to draw blood. I also had an ultrasound of the new kidney. I am still bleeding and the doctor wanted to make sure everything is ok. The tech said it is a beautiful kidney! It is quite large, I guess my donor must have been a big man. I have been losing weight, lost 12 lbs. since Monday. I am sure it is all fluid. I mentioned to the doctor that I was losing weight and he said not to worry about it, that with the prednisone I am on (60 mgs.) I will start putting on weight. He is hoping to get me down to 5 mgs. a day in the future. I am feeling pretty good. all things considered. The pain is is getting less. I am just very tired.

 

I got tired of seeing blood on my underwear and having to wash them so I had my husband go the the drug store yesterday and get me depends underwear. That way when they get bloody I can just throw them out. I can't believe I am wearing depends but one has to do what one has to do.

 

I have to measure my urine output and have to release two liters a day. That hasn't been a problem! I also have to drink two liters a day which isn't easy after years of fluid restriction. It is nice not being thirsty all the time though. My appetite isn't the greatest but I am trying to eat. Thanks for being there for me.

 

miocean


ISN Artist

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I hope your family and friends are spoiling you thoroughly!

 

Is there anything that would taste good to you? I'm pretty sure organ transplant qualifies you to be totally whimsical, so if you wanted strawberry ice cream and dill pickles, you should ask for them.wink.gif

 

Let's hear it for modern advancements in adult paper products! Don't forget to save any receipts because they'll be claimable as medical expenses.

 

I hope you have a really restful and comfortable weekend.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi miocean,

 

That's great that all's going well. It must be nice to be losing fluid weight and not have to restrict your fluids anymore. Once all the followup appointments slow down, you'll have to figure out how to fill all your new free time!

 

Butterflies rock; for hard sticks it seems the best phlebotomists don't bother trying anything else. If you ask them to use a butterfly before the first stick, usually they're happy for the tip and the first stick is the last.

 

Congratulations!!! :emoticons-yes:

 

Hugs,

 

warmheart

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Congratulations on your kidney transplant, being home already and the rest of the wonderful gains you are realizing. :emoticons-yes:

 

I am so happy for you! I have kept you in my thoughts, as I have no doubt many here have.

 

May you continue to rest, take care and heal well.

 

As Sheryl mentioned, the O2 will safe-guard your organs and help until you are recouperated.

 

Thank you SO MUCH for letting us know...We LOVE news like this :emoticon-hug:


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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