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moe

Cyclophosphamide

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Hi everyone,

 

I'm starting my treatment this week after several delays due to lung tests. Hoping I will start to feel better. Hope it helps my skin as it is affecting me all over my body. I'm not sure how long treatment takes. Anyone know?

 

Fingers crossed,

 

moe

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Hi Moe

 

Good luck with your Cyclophosphamide treatment this week. :)

 

I received 6 cycles of IV Cyclophosphamide over a 6 month period & had blood tests before each infusion to check my liver & kidney function & also to make sure my white blood cell count wasn't too low. At the end of the treatment I had the most fantastic improvement in my lung function; the TLCO went from 48% before treatment to 73% afterwards so in my case it was well worth the effort!! ;) I can't honestly say that my skin improved at all but I don't actually have much skin involvement anyway & obviously everyone reacts to various treatments differently.

 

I do hope that you have as much success with your treatment as I did. :D


Jo Frowde

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Hi again Moe

 

After I'd replied to your post it occurred to me that you might have wanted to know how long the actual infusion took. Each one was about 2 hours as I had a Messna infusion first to protect my bladder (one of the less pleasant side effects of the drug!! ;) ) & then an anti-sickness infusion & then finally the Cyclophosphamide. Also it's absolutely imperative that you drink copious amounts of water both throughout the infusion & afterwards, again to protect your bladder. ( I got to know very well every public lavatory between The Brompton & Victoria Station........methinks perhaps too much information!!! ;) :lol::lol: )


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello Moe

 

I have no experience with cyclophosphamide, I hope that you have excellent results from the treatment and let us know how you get on.

 

Take care.


Amanda Thorpe

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