• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Sign in to follow this  
Followers 0
moe

more delays

5 posts in this topic

hi everyone went for my treatment last week guess what spent three hours trying to get a canula in, skin that tight it did not happen got to have a hickman line insertion next week instead, something else to worry about. at least no more needles for a while.as anyone else had problems like this , does this get any better not been able to a thing now for six months

Share this post


Link to post
Share on other sites

Sorry to read your post, Moe; what a pain in more ways than one!! :rolleyes:

 

I did have one nurse who took 3 goes to get the canula in my vein correctly; I tactfully pointed out that I wasn't a pin cushion and that perhaps her technique needed a little fine tuning!! ;) :lol:

 

I do hope the Hickman line is successful and that you are finally able to receive your treatment.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Moe

 

I have had similar issues while having a canula put in for treatment. It took 2 nurses, 2 doctors and then finally a consultant to get mine in, I really did feel like a pin cushion. In the end I sat for about 2 ½ with electric heat pads wrapped round my arms and then the consultant used a very fine butterfly needle (suitable for a young child). I was very sore and then the canula 'blew out' and they had to take it out and redo it the next day.

Now when I go for blood tests etc I warn them!

 

Buttons

Share this post


Link to post
Share on other sites

Hello Moe

 

Sorry you've had this problem, with a Hickman line you won't become a pin cushion though. I have a friend who has a Hickman line because her veins are so inaccessible due to scleroderma so it's certainly not unheard of.

 

I hope you get back on track with your treatment a take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Moe

 

Sorry about your vein problems. I have had it all: femoral line, central line and now a Hickman line.

 

Have had a Hickman line for about 3 years and am now on my second. It seems a bind having it flushed etc at first, but you soon get used to it. There can be the occasional problem but it is far preferable to having cannulas (which they cannot get into my veins)for treatment which I have for a week every 3 months - and taking blood is so easy.

 

Good luck

 

Gill

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0