• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Sign in to follow this  
Followers 0
relicmom1

anyone on domperidone?

10 posts in this topic

I have been on generic Reglan for years for gastroparesis. Due to the recent problems that people are having with it, my gastro doctor is stopping it and putting me on domperidone 10mg four times a day. Has anyone had to switch ? Or does anyone take it now? I am wondering if it will work as well as the generic Reglan does for me. I didn't have any problems with it, but my doctor is switching all of his patients off of it. I would appreciate anyone's thoughts.


Peace :)

Barbara aka relicmom1

Share this post


Link to post
Share on other sites

Relicmom1, are you getting the domperidone from Canada or another country? Unless the FDA has officially OK'ed this drug you couldn't purchase it in the United States legally. Maybe things have changed in the past year or two. I was taking Reglan until about 5 months ago. I was getting facial tics that were starting to annoy me so I slowly took my time and with my doctors advise got off the Reglan. I still have slight facial tics which may never go away but so far mine have lessened. I only have a few a couple times daily now so that is a good thing. If bowel and esophageal issues stay under control I haven no intentions of starting any new meds. Domperidone was mentioned to me several years ago. My doctor has a license in Canada and in the U S so I won't have any problems getting it. Please get back with us once you have taken it for awhile and let us know if it helps you with abdominal pain or bloating or esophageal issues. Good luck.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Barbara,

 

I've been on it for about 3 years now, with no problems. It works best if you take your daytime doses 1/2 hour before meals and the last one at bedtime.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Barbara,

I haven't every tried domperidone, so I can't speak from experience, but as Sheryl mentioned, it is not allowed to be prescribed in the United States. We have a small section on it if you'd like to check it out: Domperidone Warning. Apparently, it has the potential for some serious side effects, so please discuss this with your doctor. I hope you find something that works for your and doesn't do more harm than good.


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Thanks for the replies!! I know I can always count on you guys. And no, domperidone is still not available in this country. I had to order it from Canada. My gastro doctor here wrote me a prescription for it and told me how to order it over the internet. My sclero dr at Johns Hopkins had also mentioned changing me from Reglan to the domperidone. She said she orders it from Canada for her patients. My order has been shipped, but they say it can take up to three weeks to get it. I will let you guys know how I do on it. Thanks again!


Peace :)

Barbara aka relicmom1

Share this post


Link to post
Share on other sites

As I undersstand, it can be prescribed at a teaching hospital. I have been on it for two years

without any side effects.....alice1

Share this post


Link to post
Share on other sites

Relicmom1...it takes about a week....alice1

Share this post


Link to post
Share on other sites

Thanks Alice! I received my domperidone in the mail today, so we shall see. I will let you guys know how it goes.


Peace :)

Barbara aka relicmom1

Share this post


Link to post
Share on other sites

I saw my gastro today (in the UK) and she has has prescribed Domperidone-I will also let you know how I find it.

 

Lizzie

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0