ISN Volunteer Position Description: Development Director

If you are interested in applying for any volunteer position with the nonprofit International Scleroderma Network, or if you have further questions about any position or possible openings, please email [email protected]

Title: ISN Director of Development* or ISN Chair of Development**

(This position description is for our development/fundraising area, not for Information Technology Development.)

Position open.

International Scleroderma Network (ISN)

The International Scleroderma Network (ISN) is an international nonprofit 501(c)(3) agency founded in Minnesota. We provide healthcare information and support via our 5,000+ page SCLERO.ORG website in 23 languages. We publish the Voices of Scleroderma book series, and we support international research efforts for scleroderma.

Scleroderma is a rare arthritis/autoimmune disease that is popularly known as the "disease that turns people to stone" because it causes a hardening of the skin, blood vessels and/or internal organs.

Position Reports To

ISN President


If this position is filled in an off-board capacity, it will be handled entirely through email, so candidates may reside anywhere in the United States. All candidates must have their own reliable Internet access.

Language Requirements

Candidate must be able to read and write English at college level.

Position Summary

To develop, direct and oversee all fundraising and marketing activities of the ISN as well as the policies of the organization including preparation of annual and current up-to-date monthly reports of these activities.

Essential Functions

  1. Prepares and submits the annual fundraising and marketing report to the Board for approval
  2. Develops and oversees fundraising, marketing and grant submission functions. Works closely with and monitors the ISN committees established to meet the goals and mission of the ISN
  3. Attends monthly ISN Board of Directors meetings and/or files email reports to the ISN Board and is available upon request as needed
  4. Reviews reports to analyze projections of fundraising and other development activities against actual figures, budgeted expenses against final totals, and suggests methods of improving the planning process as appropriate
  5. Offers expert organizational development planning support and implementable development programs to the President, Vice President, and Board representatives of other functional areas.

General Requirements

  1. Strong communication skills to effectively represent the ISN in public or media requested interviews and meetings, and in written materials such as articles, memorandums and correspondence with volunteers as well as international and local contacts
  2. Ability to reach effective and objective impartial decisions in a timely fashion by weighing a variety of viewpoints to determine if a project is within the mission of the organization as well as implementable
  3. Ability to effectively engage in a community-based and international communications, decision-making, and to work successfully in a multilingual environment
  4. Disciplined in maintaining a demanding workload as is required by the organization
  5. Personal integrity that avoids conflicts of interest and undue influence by external parties in executing the Board of Directors? responsibilities.


  1. Previous experience serving in the area of development/fundraising on a nonprofit board of directors
  2. Experience in proposal development and grant writing for government, corporate and foundation funding
  3. Experience in developing and implementing appropriate and successful fundraising activities especially in the areas of online fundraising for a health-oriented nonprofit agency and creative fundraising programs to be used by the general membership to generate additional donations
  4. Demonstrated ability to successfully manage relations with local and international funding sources/organizations as well as multilingual, virtual volunteers
  5. Excellent verbal and written communication skills
  6. Excellent analytical and organizational skills
  7. Ability to use software in a Windows environment with a working knowledge of Word, Excel, PowerPoint and other database software.
Go to Position Description: Email Support Specialist

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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