ISN Team

Dr. Magdalena Dziadzio (English Version)

English — Italiano — Polski

Dr. Dziadzio obtained her medical degree in Poland. She worked in the Department of Internal Medicine, University of Ancona, Italy. She developed her knowledge about scleroderma working with Prof. Carol Black and her team at the Department of Rheumatology, Royal Free Hospital, London.

Magdalena Dziadzio, MD, PhD, wrote the introduction to Voices of Scleroderma Volume 1 and solicited medical articles and translated many of the stories for Voices of Scleroderma Volume 2.

Dr. Dziadzio is also ISN Translator for Sklerodermia od A do Z, which is our Polish (Polski) version. She hopes that her translations will be of help to Polish scleroderma patients and their families in understanding and in fighting against this complicated disease.

She is the lead investigator of two abstracts based on inquiries to the International Scleroderma Network, A Pilot Database Analysis of Enquiries Submitted to the Medical Committee of an International Scleroderma Website (EULAR 2003) and Internet as a Tool for Patient Support Groups to Provide Quality Information (EULAR 2004).

In addition, Dr. Dziadzio collaborated with Dr. Mario Gismondi in editing Sclerodermia dalla A alla Z, our Italian (Italiano) version.

Also See

Internet as a Tool for Patient Support Groups to Provide Quality Information. AIM: To compare the inquiries received by the Scleroderma Society (SS), UK with those received by the International Scleroderma Network (ISN). Worldwide collaboration of medical professionals with patient organisations should lead to a better understanding of clinical needs and better support. Web presence and e-mail contacts should be used by patient organisations in order to improve the quality and availability of support. M. Dziadzio. SL0003 EULAR 2004. (Also see ISN, Dr. Roy Smith, Prof. Carol Black, and Shelley Ensz)

A Pilot Database Analysis of Enquiries Submitted to the Medical Committee of an International Scleroderma Website This pilot database analysis identifies the main areas of information that should be available to those affected by, or working with, scleroderma. Magdalena Dziadzio FRI0078 EULAR 2003. (Also see ISN, Dr. Roy Smith, Prof. Carol Black, and Shelley Ensz)

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The most important thing in the world to know about scleroderma is sclero.org!