SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.

ISN Board of Directors

Founder and President

Strong, Sandy

Vice President

Ensz, Shelley


Strong, Sid

Board Member

Frowde, Jo

Liaison to ISN Medical Advisory Board

Molitor, Dr. Jerry

Legal Adviser

MAP for Nonprofits

Retired Board Members

Tony Varghese served on the ISN Board of Directors from 2006 to 2018, and continues with our organization as a Project Manager (a role he has also held for the past 12 years.)

Go to Development Team

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)