Support Services Team for the International Scleroderma Network

ISN Director of Support Services

Responsible for all areas of community, affiliated, and online support groups for the ISN, in the U.S. and worldwide.

Open volunteer position. Apply now.

Support: Blogs

Blog Manager

Frowde, Jo


Justis, Serena 'Barefut' (Retired)
Lowe, Barbs (Retired)
Roar, Penny (Retired)
Thorpe, Amanda
Thorpe, Michael

Support: Skype Chats

Jo Frowde
Kraft, Susie

Support: Email

Email Support (English)

Open Volunteer Position. Apply.

Email Support (English: Eye Involvement Only)

Irvin, Dr. Liz

Email Support (Italian)

Abati, Angela

Email Support (Español)

Open Position: Español. Apply.

Support: Forums

Please read our Sclero Forum Guidelines. Submit reports about forum issues (difficulty registering or logging in, spammers, troublesome messages, etc.) to [email protected]. This notifies both the Forums Manager and Forums Director.

Sclero Forums Manager

Frowde, Jo

Assistant Manager

Open Volunteer Position. Apply.

Senior Support Specialist

Thorpe, Amanda

Support Specialists

Roland, Pamela 'Sweet'
Trewartha, Judy

Support: ISN Support Groups and Affiliates

Acosta, Matilde: Venezuela
Castellanos, Francisco: Colombia
Le Gendre, Susan: Trinidad and Tobago
Myohanen, Emmi: Finland
Thorpe, Amanda: U.K.

The ISN has also has outreaches in 23 languages and dozens of countries! See Languages/Countries.

Support: Phone Hotline (English)

Ensz, Shelley
Roland, Pamela 'Sweet'
Thorpe, Amanda

Go to ISN Translation Team

Giving Assistant
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE button.


TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.

The most important thing in the world to know about scleroderma is!

Donate Now
Copyright 1998-2018, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.