Ainhoa: Esclerodiermia de Morfea
Hace un año, tras una biopsia, me diagnosticaron una morfea esclerodermia, he leído en internet sobre esto, y muchas de las características no las tengo, aparentemente.
La piel no está dañada, y es el músculo el que tiene una depresión cada vez mas pronunciada, noto una sensación bastante extraña, y no me han dado ningún tipo de tratamiento aparte de una cremita.
Muchas gracias.
To Contact the Author
| Ainhoa Email: Withheld by Request Story edited 08-03-06 JTD Story posted 08-24-06 SLE ISN Senior Artist: Sherrill Knaggs Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS (Español) Ainhoa: Morfea Esclerodermia Morphea Morphea Stories Types of Scleroderma What is Scleroderma? |
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
Asociación Colombiana de Esclerodermia
Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.
Médicos
(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina
La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.
See ISN News for recent donors. Click Here to Donate.
TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
7455 France Ave So #266
Edina, MN 55435-4702 USA