Bernarda: Morfea Localizada-Golpe de Sabre
La que sufre de este mal es mi hija Paula, de 12 años. Le diagnosticaron en octubre de 2006.
Fue un golpe tremendo para mí, ella aún no toma plena conciencia de lo que le pasa, yo estoy destrozada.
Hace un mes empezó el tratamiento con metotrexato y ácido fólico.
Me angustia ver su desesperación al ver que la alopecia continúa su camino.
Soy de recursos económicos limitados, pues soy profesora rural aquí en Chile, realmente estoy desesperada.
To Contact the Author
| Bernarda Email: [email protected] Story edited 04-07-07 JTD Story posted 04-10-07 SLE ISN Senior Artist: Sherrill Knaggs Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS ENGLISH: Caregiver Stories En Coup de Sabre Medical: Diseases and Symptoms Symptoms of Systemic Scleroderma Types of Scleroderma What is Scleroderma? |
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
Asociación Colombiana de Esclerodermia
Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.
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La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.
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