Chela: Esclerodermia Difusa
Desde 2002 me diagnosticaron esclerodermia difusa. Fue terrible para mí; las facciones de mi cara cambiaron mucho, pero sin ser notorio para las personas que no me conocen. Las amigas me dicen que me hice la cirugía plástica.
Pero lo terrible son las ronchas que me han salido en el pecho, algunas tan incómodas que me las han operado.
Los dolores en las articulaciones son fuertes, pero manejables. Tomo medicamentos, pero lo que me ha traumado es la parte estética.
To Contact the Author
| Chela Email: [email protected] Story edited 05-07-08 JTD Story posted 01-21-09 SLE Story Artist: Ione Bridgman Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS |
ISN Artist: Ione Bridgman
ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series.
ISN Translator and Editor: Alba León
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
Asociación Colombiana de Esclerodermia
Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.
Médicos
(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina
La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.
United Way of Snohomish County
See ISN News for recent donors, including memorials for
Jim Miller, Arlene Marie Petulla, Frances Maude Baldwin Watson and Rubye Mai Blocker Westmoreland.
Thanks to Winn Schillberg for donating to scleroderma research.
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