Liliana: Esclerodermia Morfea
Hola me llamo Liliana y me diagnosticaron esclerodermia morfea hace 7 años. Al principio desconocía totalmente la enfermedad, me hicieron biopsias hasta que me dijeron que era esclerodermia. Mis manchas están en piernas, caderas, espalda y algunas en los brazos.
En estos años que he convivido con la enfermedad aprendí que lo peor es quedarse quieto sin hacer algún tipo de gimnasia; intenté varias rutinas pero la que más me ayudo es pilates que consiste en ejercicios de estiramiento y flexibilidad, eso me ayudo mucho.
Me gustaría conocer más de mi enfermedad, si hay algún tipo de alimentación especial, si hay algún tratamiento nuevo. Me despido esperando que alguien se conecte conmigo para asi poder compartir charlas, consejos, y demás.
To Contact the Author
| Liliana New email address needed 12-20-06 SLE Old Email Prefix: liliana_peralta67 Story edited 02-04-06 AL Story prepared 02-04-06 JTD Story posted 02-25-06 SLE ISN Senior Artist: Sherrill Knaggs Story Translator: Alba Leon Story Editor: Judith Thompson Devlin |
LINKS (Español) Esclerodermia (Español) Morfea (English) Liliana: Morphea (English) Morphea Scleroderma (English) What is Scleroderma? |
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
Asociación Colombiana de Esclerodermia
Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.
Médicos
(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina
La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.
United Way of Snohomish County
See ISN News for recent donors, including memorials for
Jim Miller, Arlene Marie Petulla, Frances Maude Baldwin Watson and Rubye Mai Blocker Westmoreland.
Thanks to Winn Schillberg for donating to scleroderma research.
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