Marina C: Paciente de CREST
Spain
Hola. Soy una paciente diagnosticada de Crest hace 5 años, con síntomas de la enfermedad desde mucho tiempo atrás.
Tengo telangiectasia por todo el cuerpo, sobre todo en cara, cuello y tronco, fenómeno de Raynaud muy acusado y dolor muscular generalizado.
Actualmente la única medicación que tomo es un tratamiento hormonal porque el crest me provocó hipotiroidismo. Escribo para informaros que el Hospital Puerta de Hierro de Madrid (España),está probando en humanos un tratamiento con la molecula P144, que creen que puede ayudarnos en la enfermedad.
Para informaros mejor, entrar en su página web o en la de Europa Press (fue donde leí la noticia). Un saludo a todos.
To Contact the Author
| Marina Email: [email protected] Story edited 04-23-07 JTD Story posted 06-01-07 SLE ISN Senior Artist: Sherrill Knaggs Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS (Español) Esclerodermia English: Marina C: CREST Patient CREST Scleroderma Muscular Pain Raynaud's Raynaud's Patient Stories Telangiectasia Medical: Diseases and Symptoms Scleroderma Experts (Worldwide) Sclero Forums Symptoms of Systemic Scleroderma Types of Scleroderma What is Scleroderma? |
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
Asociación Colombiana de Esclerodermia
Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.
Médicos
(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina
La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.