ISN: Spanish Version (Español)
Support Groups: International
Acerca de la Esclerodermia.
Tipos de Esclerodermia.
La Esclerodermia Lineal.
Dificultades para el Diagnóstico.
Ayuda y Especialistas.
Historias 40+: Morfea, Lineal, Sistemica.

Monica O: Hija de Paciente con Esclerodermia CREST


Miniature Red Rose by Sherrill Knaggs, ISN Artist Soy argentina; mi madre de 76 años, tras 30 de deambular por varios médicos y sufrir sin saber por qué, fue diagnosticada con esclerodermia CREST avanzada. Está en tratamiento, pero padece hipertensión pulmonar, calcificación de la tráquea, los bronquios y parte de un pulmón, tiene los dedos de la mano y el pie derechos necrosados, y sufre dolores terribles en sus dos piernas (ambas afectadas con calcificaciones hasta arriba de los tobillos).

Me gustaría saber si existe algo para atenuar ese dolor y mejorar mínimamente su calidad de vida. Es espantoso ver cómo desmejora día a día, me siento impotente porque no sé qué hacer. Ella se aferra a Dios y le pide que la calme.

Gracias por atender mi consulta.

To Contact the Author

New email address needed 10-10-06 SLE
Old Email Prefix:
Story edited 08-16-06 JTD
Story posted 09-26-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
(Español/Spanish) ¿Qué es la Esclerodermia?

Monica O: Daughter of
Mother with CREST

Caregiver Stories
CREST Scleroderma

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Asociación Colombiana de Esclerodermia

Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.


(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina

La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.

Go to Moroni: Esposa de Paciente con Esclerosis Sistémica

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