The following story is featured in the ISN's Voices of Scleroderma Volume 1 book. The book has articles by world experts in scleroderma and caregiving, including Dr. Joseph Korn, as well as true personal stories from those affected by scleroderma and related illnesses.
Krys: Morphea Scleroderma I am still not comfortable with the scar but I have been free of scleroderma for quite some time…
The International Scleroderma Network thanks an anonymous donor for their generous donation in loving memory of Marta Marx. Posted 6-28-04. (Also see ISN Donations)
Jenny: CREST Scleroderma My symptoms started to appear over ten years ago, but I was only recently diagnosed…
Liz: Localized Scleroderma: Morphea Over the next eight months I was misdiagnosed by three different doctors…
Andie Friend: Morphea I want to share my story with scleroderma that is nearly eighteen years old now…
Amber: Morphea with Possible Systemic Sclerosis My story with Morphea started two years ago. I went to a tanning salon…
Carol Soto: ISN Data Analyst. Carol Soto joins the ISN as Data Analyst, Assistant to ISN Membership and Donation Services Coordinator, and Volunteer Services Assistant. New page 6-17-04.
Catherine: Mother of Linear Scleroderma Patient (Emma W's Story) My mouth does not close as the lips cannot cover my protruding top jaw, and there is little saliva flow over these teeth..
(Indonesia) Iona Carina: Penerjemah Bahasa Indonesia ISN. Halo, nama saya Iona Carina. Saya penerjemah Bahasa Indonesia ISN. Saya lahir, besar, sampai lulus SMU di Surabaya, Indonesia. New page 6-11-04. (Also see Iona Carina, ISN Indonesian Translator)
Iona Carina: ISN Indonesian Translator. I graduated from high school in Surabaya, Indonesia and am studying Communication, Advertising and Design Management in Rotterdam, The Netherlands. New page 6-10-04. (Also see ISN Team Members)
The following story is featured in the ISN's Voices of Scleroderma Volume 1 book.
Dora: Linear Scleroderma I try to enjoy life as I always have tried, and also give the world a smile and a kind word as often as possible…
ISN Email Support Specialists, Open Position Volunteer applications are now being accepted for Email Support Specialists to answer ISN site inquiry emails. Training provided. Posted 6-7-04.
The International Scleroderma Network extends our sympathy to the family and friends of Joyce Masini. We thank the McCally's for their donation in her memory. Posted 6-7-04.
Anna: Linear Scleroderma (Poland) I realized that it is not worthwhile to give up, even during the most difficult moments; it is necessary to fight and to believe that it will be better. If I had not believed I would not have been alive now…
(Polski/Polish) Anny: Linear Moja historia zaczęła się dokładnie dziewięć lat temu…
ISN Finalist in the TechGrants Spring 2004 Awards. The International Scleroderma Network (ISN) has been accepted as a finalist for the TechGrants Spring 2004 Awards. With these awards, TechFoundation seeks to acknowledge nonprofit/nongovernmental organizations that are making innovative use of technology to better pursue their missions. On September 1, 2004, TechFoundation will reward six organizations with cash grants totaling $25,000. Posted 6-5-04.
Bill M: Localized Scleroderma All I want to say is that your life will go on. Do what makes you happy: pray, fish, ride motorcycles, whatever….
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
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SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: