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Scleroderma ISN/Website |
June 2006 ISN News
In Loving Memory of Doris Schwartz
The International Scleroderma Network thanks Anonymous and Michelle Little for their donation to tackle scleroderma research in loving memory of Doris Schwartz. Posted 06-27-06. (Also see ISN: In Loving Memory Donors)
In Loving Memory of Doris Schwartz
The International Scleroderma Network thanks All Americanfor their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Doris Schwartz. Posted 06-26-06. (Also see ISN: In Loving Memory Donors)
In Honor of Sheryll Bedingfield, Tackling Scleroderma Now!
The International Scleroderma Network thanks Elaine and Richard Freund & Family for their comprehensive donation to tackle scleroderma research, support, education and awareness, in honor of Sheryll Bedingfield. Posted 06-26-06. (Also see Comprehensive Donors)
In Loving Memory of Maxine Gail Mackler
The International Scleroderma Network thanks Gerald Mackler for his June donation in loving memory of Maxine Gail Mackler. Posted 06-26-06. (Also see ISN: In Loving Memory Donors)
In Honor of Sheryll Bedingfield, Tackling Scleroderma Now!
The International Scleroderma Network thanks Ronald Georgeff for his comprehensive donation to tackle scleroderma research, support, education and awareness, in honor of Sheryll Bedingfield. Posted 06-26-06. (Also see Comprehensive Donors)
ISN Scoring for Scleroderma Huge Success!
The Scoring for Scleroderma Women's Soccer Tournament, which was held on June 19, 2006, at the Canton Sports Plex, in Canton, Massachusetts was a huge success! Everyone had a great time and generously donated to this worthy cause! At this time, the tournament has raised over $5,000 with donations still coming in! Posted 06-22-06.
06-19-06: ISN Scoring for Scleroderma Fundraiser Today!
Scoring for Scleroderma to benefit the nonprofit International Scleroderma Network is kicking off today—Monday, June 19th at the Canton Sports Plex, in Canton, Massachusetts. You can join in the fun and support the fundraiser by shopping at the special Scoring for Scleroderma Gift Shop ! Posted 06-19-06 by Lisa Bulman, ISN Fundraiser.
Sid Strong: ISN Board of Directors
Sid Strong: ISN Board of Directors. I have closely observed the establishment and growth of this amazing website, and the resulting nonprofit International Scleroderma Network. I am a former business owner. I presently serve on two other boards, and I am delighted to put my experience to good use in making sound decisions for the ISN. Posted 06-16-06.
07-01-06: Bogotá, Columbiana
Colombiana Support Group Nuestra proxima reunion se realizara el Sabado 1 de Julio de 2006 a las 11:00 A.M. en la Universidad Nacional de Colombia. Sede Bogota. Facultad de Medicina. Dirige la Dra. Paola Coral Alvarado, Internista - Residente Reumatologia. Posted 06-15-06.
06-19-06: ISN Scoring for Scleroderma Fundraiser!
Scoring for Scleroderma to benefit the nonprofit International Scleroderma Network is ready to kick off! The women's soccer tournament will be held on Monday, June 19th at the Canton Sports Plex, in Canton, Massachusetts. You can join in the fun and support the fundraiser by shopping at the special Scoring for Scleroderma Gift Shop ! Posted 06-14-06 by Lisa Bulman, ISN Fundraiser.
Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!
The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 06-09-06. (Also see ISN: Comprehensive Donors)
Pulmonary Hypertension Registry of Scleroderma by SCTC
Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States who are at high risk for developing pulmonary hypertension as well as those with newly diagnosed with pulmonary hypertension, by members of the Scleroderma Clinical Trial Consortium (SCTC). Posted 06-07-06. (Also see Pulmonary Hypertension)
06-22-06: Shelley Ensz: Book Signings at Panera Bread in Twin Cities
Shelley Ensz, Founder and President of the International Scleroderma Network and Co-Editor of the Voices of Scleroderma Book Series 
ISN Nominated for Tech Award for Technology Benefiting Humanity!
The nonprofit International Scleroderma Network has been nominated for The Tech Museum Awards for Technology Benefiting Humanity, in the Health category. The Awards is an annual program that honors individuals and organizations that are creatively applying technology to benefit humanity. It is all of us working together, as site visitors, members, and volunteers, who have earned this special recognition. Posted 06-02-06.
ISN Shop for Scoring for Scleroderma Fundraiser by Lisa Bulman
Join in the fun and support ISN's Scoring for Scleroderma fundraiser by shopping at the special Scoring for Scleroderma Gift Shop ! Order your items now—everything from t-shirts, track suits, sweatshirts, hoodies, dog t-shirts, bibs, infant clothing, mouse pads, coffee mugs, calendars, aprons, caps, tote bags, and teddy bears are available for purchase online and the profit from each sale benefits this fundraiser! Posted 06-02-06. (Also see Lisa Bulman, ISN Fundraiser)
Thank you to ISN Donors, Tara Brown and Michael Wozniak
The International Scleroderma Network extends our thanks to Tara Brown and Michael Wozniak for their Microsoft Giving matching donation. Their comprehensive donation helps us provide a powerhouse of vital information and support services and top notch international peer-reviewed research. Posted 06-02-06. (Also see ISN Donors)
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:
7455 France Ave So #266
Edina, MN 55435-4702 USA